[mhnevillParticipant]

Hi Jean

I just picked up this post while getting used to the new site. It was very helpful to me because, unlike you, on behalf of your husband, I want to put off treatment for as long as possible. After an op for a plasmacytoma in Sept, 10 I feel better than I have done in the past 18 months even with my arthritis. I don't want to make myself feel "worse" with chemo related side effects before I absolutely have to. My paraprotein level was 10.

I feel encouraged that your husband has gone 2 1/2 years without treatment.

All best wishes to you both.

Mavis

[mhnevillParticipant]

Hi Mari
I was interested to read in yuour post that Steve had a similar experience to me last January ?2010. I was diagnosed and had my op in Septembet this year. I am awaiting radiotherepy, but the story about further treatment changes all the time as to yes or no to immediate chemo. I am currently awaiting a recent blood test result.

What i am interested in is, did Steve have chem and if so what, and with what side effect?

Best wishes to you both.

Mavis

[mhnevillParticipant]

Hi Susan
I had a similar experieince to your Dad and had to have surgery.
I am now getting mobile again with superb help from the mobile physio, however, I am still wobbly and it is taking time for the strength to come back to my legs. I am only just beginning to use crutches rather than a zimmer, for some of the time. This is ten weeks post op.
I am practising getting upstairs, one at a time, and coming down, gengerly, backwards. I hope to sleep upstairs again soon.

I find that setting myself goals, with the physio is helping.

Best wishes to your Dad and to you. There is so much to get your head round, isn't there. I am awaiting Radiotherepy,

Mavis

[Author]

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