[mich2503Participant]

Hi Rebecca

I’m glad to hear that you are back to normal now. For me that seems such a way in the distance, although I know I can get there.  i am currently having dialysis 3 times a week, they think my kidney function has improved slightly but not enough, though they are still hopeful that they will recover.  I do get very tired on the dialysis days but otherwise am trying to live as normally as possible, hopefully one day I can get back to work as well.

Our stories are so similar and it’s good to know there is light at the end of the tunnel.

Best wishes

michele

[mich2503Participant]

Yes I am in the UK. I was lucky in a way because the consultant at the hospital when I was admitted was a specialist  in Myeloma and very much involved in research, I don’t know if that had a bearing on my getting Velcade straight off, and so far I have not had much in the way of side effects thankfully. I was only 49 when I was diagnosed, which is relatively young so although looking back I had many of the symptoms it wasn’t picked up. I have some erosion in my bones but so far it’s only in a couple of places and not too bad thankfully.

michele

[mich2503Participant]

Hi Carol

Thanks for replying. I am having Velcade injections twice a week, I have had 8 so far, and taking Dexamethasone. This all came as A total shock, though I had been poorly for a few months no-one realised how serious it was until my kidneys failed and I was rushed into hospital where they also  diagnosed the myeloma. its good that there are other people who are going through the same thing that can help.

Michele

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