Myeloma Forum | michaelc | Activity https://forum.myeloma.org.uk/members/michaelc/activity/ Activity feed for michaelc. Sun, 26 Apr 2026 02:46:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 328e41cbc9db428d906bd71681cb0bc7 michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/page/2/#post-137889 Wed, 09 May 2018 11:30:26 +0100 Hi Jan,

Well done.  Don’t be too hard on hubby! ….Good days/ bad days.

Those steroids are tough!

All went well at the hygienist today. I did explain the possible problems again, and she was most sympathetic and helpful, and subsequently very gentle.

Kind regards,

Michael

]]> 83bdbaf2573a02b3a6ba02d88874af70 michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/page/2/#post-137874 Tue, 08 May 2018 14:28:24 +0100 Hi Mavis,

Glad to hear that you find things funny… well done you!

I doubt if even the saddest person will be into BRONJ porn, so doubt if your photos will become viral :-))

I’m going to see the dental hygienist tomorrow for the first time since having my BRONJ. I have been super careful to notify them to be gentle.

I wonder if anyone knows…[Read more]

]]> b5cc803b06c7b99449e6fa0066f1f081 michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/page/2/#post-137873 Tue, 08 May 2018 14:19:53 +0100 Hi Jan,

Sorry to  hear about your readings. I hope you are coping okay (have we a choice?)

very best wishes,

Michael

]]> dbba5b21be42ff378330872594e29835 michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/page/2/#post-137712 Tue, 24 Apr 2018 10:47:23 +0100 Hi,

It’s a damned nuisance having BRONJ, but at least we’re still here.

I have a full set of top dentures, and used to have partial bottom ones. Obviously, I cannot wear the bottom ones any more, as they would rub against the lower gum/bone.

I have some exposed bone, which has increased lately, bit my Maxillo specialist is leaving it be.

I did…[Read more]

]]> 2d2fc65fdebdf7fbf776585108b995c6 michaelc replied to the topic Neuropathy in the forum Related conditions https://www.myeloma.org.uk/forums/topic/neuropathy/#post-133014 Wed, 12 Apr 2017 12:53:07 +0100 Hiya lynda 1

Don’t despair. I have Multiple Myeloma and also Lymphoma.

I had chemotherapy and stem cells harvested in early 2014.

The skin on the soles of my feet just peeled of in sheets… quite alarming at the time. I REALLY struggled to walk… the podiatrist could do nothing to help as he said it was nerve damage. I took Gabapentin 300mg x…[Read more]

]]> 1b176e69169dc10d7227262b650a6c9a michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/page/2/#post-132153 Tue, 07 Mar 2017 18:22:32 +0000 Hi,

Well, the maxillo facial specialist has confirmed that I do have Osteonecrosis of the jaw.

It has healed up very well following the operation I had to take a biopsy and generally clean up the excess bone growth on my lower gum. I am delighted to say that the CINDAMYCIN antibiotic has got rid of the infection that was causing pain.

I expect…[Read more]

]]> bcc39a3bf63c36cbeb461b01718d5714 michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131611 Thu, 19 Jan 2017 17:56:14 +0000 Hi Jan,

Thank you very much for your reply and information. Sounds like you must have been one of the first in the UK to have the Zometa infusion.

I will certainly update when I receive the results from the biopsy.

Kind regards,

Michael

 

]]> 133b5645c84973a482e76619dcd49306 michaelc replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131598 Wed, 18 Jan 2017 22:25:59 +0000 In my case, my lower dentures were becoming uncomfortable, so I visited my dentist to get new ones. He discovered “something” in the gum, and was due to extract it. Fortunately, my  wife reminded him of my ongoing treatment at Christies. He subsequently looked up Zometa to discover it was a Bisphosphonate, and decided not to touch it and referred…[Read more]

]]> 5dba0dc12772113d31d94348b4cba393 michaelc posted an update: Hi Guys, well, my gum is healing well. I have seen the Oral […] https://forum.myeloma.org.uk/activity/p/48224/ Wed, 18 Jan 2017 22:11:49 +0000 Hi Guys, well, my gum is healing well. I have seen the Oral Specialist again (Maxillofacial Dept) but he has no definitive results; although there are signs in the biopsy of abnormality in the white cells. My sample of bone taken from my gum has been forwarded now to Leeds for decalcification and further tests. They have said that a larger sample…[Read more]

]]> 0 de969d034ea973b9da71756da9b4a0a4 michaelc started the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/ Wed, 28 Dec 2016 16:55:28 +0000 I am currently in remission from BOTH Lymphoma and Multiple Myeloma diagnosed in 2013.
I had Chemotherapy and Stem Cells harvested in January 2014.
I have been on monthly infusions of Zometa (Bisphosphonate) since May 2104. In 2017 I am prescribed to have the infusions every 3 months.
As at Dec 2016 I am currently having tests for Osteonecrosis of…[Read more]

]]> 5dfee6f07e1aef2dd2ac0317817b00d6 michaelc became a registered member https://forum.myeloma.org.uk/activity/p/48016/ Wed, 28 Dec 2016 16:24:05 +0000 0