Hi Liz

I am so sorry to hear that Kev has relapsed, I hope all goes well with velcade.

Much love Michelle x x

Hi Only me

I have asked previously about a hereditary link,and the answer has always been no, however, recently I had some blood tests done and had raised ESR ……. this then led to me having to be tested for Myeloma!! the doc said best to rule it out with my Mum having it!?!
So really not sure but think that it sounds like it is something…[Read more]

Dear carol

I am so sorry to hear of your loss, I lost my Mum on the 13th of May to this dreaded disease. I fill like there is a great big hole where she should be, I still can't get it into my head that she is really gone.

I hope as people say it does get easier.

Much love Michelle x x

Hi Sarah

Well done and glad you raised awareness for myeloma

much love Michelle x x

Hi All
Thank you all for your lovely comments …… it's a very tough time at the moment, just not sure what to do with myself!! Still can't believe she has gone and that I will never be able to talk to her again, I want to pick up the phone so badly just to speak to her one last time.

Much love Michelle x x

Hi Sarah

I was so saddened when i read your post..my heart goes out to you and your family at this sad time.

with much love michelle x x

Hi Mari

Please give Steve a HUGE WELL DONE from me, that is such fantastic news to here. Dont think i could have done that and im the fit healthy one. You must be soooooooo proud of him.
with much love michelle x x

Hi Christin

I am so sorry that you have had to join this site, sounds like you have been thrown in at the deepend with all this…….if it is any consolation, my Mum was diagnosed with MM in july 09 at 64, she was in hospital for around 6 months, she went from being a healthy person that was always on the go, to this extremely poorly lady. She…[Read more]

Hi Bridget

as you know mum has tried numerous painkillers, she is quite settled on methadone and oxynorm, good luck and hope you get the pain sorted quickly.
Are you on anything like gabapentin or pregablin? they are for bone pain.
with much love michelle x x

Hi Angelina

I think it is a fantastic idea, my mums specialist nurse suggested that to me when my mum was first diagnosed, to keep for my children, as they are very close to their Nan. I dont think anyone would be upset by this, as you are doing it for your children. good luck.
with much love michelle x x

Hi Jess
I cant help you on this one but would like to wish you good luck with your mum.
with much love michelle x x

Yes Bridget thats the one, but dont think it is spelt like that, but i just cant find the correct spelling lol!!!
I do feel really positive her proteins have only got up to 9, and that the hospital are on the ball, and not letting it go too high and I have so much faith in them.
Another 4 wk before we go again, so that we get another cycle of…[Read more]

Hi Dai

WOW that is fantastic news, I dont get on here much these days, but when i saw your post just had to comment. Well done and I am so pleased for you and Janet. Long may it continue. with much love michelle x x

Hi Bridget

So sorry for your loss, I am sending out lots of hugs and loves

Michelle x x x

Hi Bridget

I think that being nursed at home all depends on whereabouts in the country you live, here in Sheffield we have a fantastic service (which i have to add that I work for!!) We are part funded by Marie Curie and the rest is funded by the nhs (hence my contract is with the Nhs)we are a unique service and cover patients on a 24hr basis…[Read more]

Hi Dai

That is a lovely message to families and friends that have loved and lost.

with much love michelle x x

Hi Fi

My mum has myeloma diagnosed in july 2009 at the age of 64, I was told then that they dont stage this type of cancer anymore…not quite sure why.
I just wondered why you feel that you cant talk to the consultant? My Mums is fabulous I just make an appointment and he answers all my questions with such honesty, I am also in constant touch…[Read more]

Hello Ali

just wanted to say hello and welcome you to the site……as i say to all the new comers you are not alone, and we all try and do our bit to help.

with much love michelle x x x