Yep dont i know that, at the mo my eldest going thro something similar from his own email!! which we are trying to prove that he did not send, its driving me nuts! how do people do that?? and why?? My son is really depressed over the whole thing and he is only 17 and he has been suspended from college cos of it! I am so upset and cant…[Read more]
I think i agree that is defo a scam mail, be careful!! I would ring Myeloma UK I think and ask them? Please don't answer that email, sounds very dodgy to me, as far as I am aware no one in myeloma uses hotmail, they all have their own email thro myelomauk.
Please let us know what you find out
with love michelle x x
I can now confirm that the infusion Mum had was Zometa, I am sure thats not what the specialist nurse said, but hey ho I was definately in a non listening mode yday!! It took around 30 mins all in all as she had already had her blood tests on wednesday, she is back on magnesium cos thats low, but other than that she is well, and managed…[Read more]
Gaye that could may well be it!! was not really taking in what she said, which is not me……got lots going on at the minute, Not that that should be an excuse really!! I am hoping to get up to the hospital today, so will try and get the proper name for it. Ha ha yep Onwards and Upwards certainly should have been the new name. Please…[Read more]
Mum had her check on Wednesday at clinic, and was phoned by the hospital yday to go in today for an infusion, this is for bone strengthening and should help with the pain. Andrea specialist nurse phoned me last night for a quick chat about it, seems like a good thing, but i have not heard of them before. Has anyone else had them (sorry…[Read more]
Hi (sorry you didnt put your name)
It is awful and comes as such a blow when someone we love is diagnosed with Myeloma. My Mum was diagnosed in july 09 at the age of 64, how old is your brother? My mum herself buries her head and so does my dad, I joined this site not long after she was diagnosed and found help, support and most of all…[Read more]
She has had 2 fractions of radiotherapy one when she was first diagnosed and the other last summer time I think!? Maybe they might try some more?? Good look when you see prof keep me posted to what he says. By the way she will kill me if she knows i have put the pics on FB lol.
with much love michelle x x
Just a little update, Mums proteins have come down to 4 I am so pleased, Revlimid is working well!!! She is still very tired and does have increased pain, She has been referred back to the palliative pain team to have a look at her pain relief, she is on regular methadone and oxynorm for breakthrough pain relief, She is taking the…[Read more]
Hello and welcome, My Mum has Myeloma and was diagnosed in July 09, she has had a really rough time, but is reasonably well at the moment. I am sorry to hear about the problems that you are having, I can see it from both sides of your family Yours and wanting Your Dad home, and also your Stepmum, She will be feeling very frightened and…[Read more]
I am so sorry that you have bin ill, but it has proved that being admitted and IV is always the best solution, with regards the Revlimid it is working wonders on mums protein levels, and the itching seems to have settled too. Good luck with the radiotherapy keep us updated.
with loads of love michelle x x x
P.s merry christmas x x
Well said, and thank you for being you, and there with your support over and over again.
Wishing you all a very merry Christmas and Happy New Year Onwards and Upwards springs to mind.
with so much love michelle x x x
No mum doesn't have any trouble sleeping (only on the odd occasion she does) even on dex days she sleeps, she was not herself yesterday when i spoke to her on the phone, but once again she was incredibly tired and finds it difficult just to hold a conversation when she is like that. Other than that very pleasing results with Revlimid,…[Read more]
thanks guys,i am so proud of her and how she has handled having MM. I think your probably right Tom about the not been so active, we all know the less we do the more tired we are. but if that is the worst thing we have to deal with then thats pretty good.
with much love michelle x x