Hi All

Just to let you know that Mum came home last night, and is so happy to be back in her own bed lol! She is now on Revlimid and will be having weekly checks at the hospital for 8 wk. Her chest is so much better, but she still has a cough, i am sure that will get better in time.

with love michelle x x

Hi David

I dont know, all mary said was that it didnt work and that he was back on chemo, didnt give me any levels. I can ask her, hoping to meet up with her in december for a myeloma support group.

with love michelle x x

Will do david thanks michelle x x

Hi all

Hospital allowed mum to go out on half day release to see Disney on ice, she had a fantastic time, very tired when i got her back there, but least she got go.

with love michelle x x

Hi Dai

I have heard from Mary and She and her sister are fine, Dad Patrick is ok too, SCT didnt work so he is now having Velcade treatment, and suffering from breathlessness with it, but all in all they are well.

with love michelle x x

Hi david

And they happen to be in the same hospital too, but under different consultants.

Hi Bridget
Roller coaster sure is the word to use, I am going to ring the lead specialist nurse today, to see if she can explain to me what is happening.

Just when things were looking up, she was so well at the beginning of the week, I know that…[Read more]

Hi Roz
Glad he has had op now, i understand what you mean about the Northern tho for the wheelchairs for that hospital it is rather hilly!! Hopefully it wont be long before they transfer him back to hallamshire.
yes defo keep us posted.
with much love michelle x x

Hi All

it was planned that mum was coming home today, well it was not meant to be, she had really picked up at the beginning of the wk and has started to go down hill again, been to see her tonight and she is looking quite poorly. They have done 4 xrays of her lungs that they can sit side by side to look at them, not really sure what for tho?…[Read more]

HI Jackie

My mum was diagnosed july 09, and she was in incredible pain, they tried all sorts of pain killers, she is now on methadone, it works better than any other pain killer, bone pain is one of the hardest pains to control,you need to just keep nagging the docs/consultants etc, have they referred him to the palliative pain team? they are…[Read more]

Hi Roz

Omg you are having a rough time with michael, but it is good to hear from you, was getting concerned that you had not posted. where have they moved michael to Northern General or Weston park? Really cant understand what is happening with his arm tho, surely someone should know what to do with it!? keep ur chin up

with love michelle x x

Hi Dai

I have Mary's email address, i will email and see if i can get a reply, i bumped her her post a few wk ago because i was worried and she didnt reply, i will let you know if i hear anything.

with love michelle x x

Thanx Guys, Mum is really on the up she looking so much better, she stops her IV antibiotics today,waiting for prof to do his ward rounds today to find out when he is going to let her home!! will keep you posted.

with love michelle x x

Hi Min

My Mum has suffered with breathlessness the whole time she was on velcade, keep your eye on it and if you are not happy talk to the medical team about it. Mums was worse during the weeks she had the injection and got better on the 10 day break.

with love michelle x x

Hi Kevin

Glad you are out and feeling better, yes take it easy now!!

Well suppose it cant all be bad if you lost 6 kilos lol 😉

and stay optimistic, bet way to be eh.

take care, love michelle x x

Hi Nicki

Glad you have managed to join us on the new site, yep its great to put faces to names, totally agree with you there.

I dont know much about Sct as my mum cant have one, but good look and I hope Sam starts to feel better soon, and you make sure you take care of yourself too. We always forget about ourselves. Keep us posted on his…[Read more]

Hi John

Nice to meet you

with love michelle x

Hi All

Update on Mum, she is doing well on antibiotics, but will be on Iv until Monday, and she will be re assessed then, However, she has told them if she is still in nxt wk end that she WILL be going out for the afternoon to see Disney on ice (thats me mum lol 😀 ) on the negative side 🙁 , her myeloma has started to really progress again,…[Read more]

Hi Mum was started again on some more IV as she started being really poorly again yday, after 24 hrs back on them she is doing rather well, still very very tired, and got a terrible cough, but doctors pleased with her, she is very determined to be out by next wk as Mum and Me are going to see Disney on ice a wk on saturday and she is really…[Read more]

Hi Debs

At least something is now being done, your life seems to have been hanging in the balance for a long time now.

Good luck with it all, and to be honest My mum doesn't seem to have much trouble at all while she is on dex, not sure why when I read what everyone else goes through lol, Most people get on relatively well with CDT think the…[Read more]

Hi Roz

If you are not happy go through PALS, and make a complaint, thats what they are there for, I had to complain last yr about the same hospital and it was dealt with really well, that is the only way that these problems can be stopped. I am so sorry that you are having problems though, love to you both

with love michelle x x