I am so sorry to hear that Kev has relapsed, I hope all goes well with velcade.

Much love Michelle x x

I have asked previously about a hereditary link,and the answer has always been no, however, recently I had some blood tests done and had raised ESR ……. this then led to me having to be tested for Myeloma!! the doc said best to rule it out with my Mum having it!?!
So really not sure but think that it sounds like it is something…[Read more]

I am so sorry to hear of your loss, I lost my Mum on the 13th of May to this dreaded disease. I fill like there is a great big hole where she should be, I still can't get it into my head that she is really gone.

I hope as people say it does get easier.

Much love Michelle x x

Well done and glad you raised awareness for myeloma

much love Michelle x x

Much love Michelle x x

I have not commented on here for a while.
Just wanted to let you know that My Mum passed away on Sunday 13th May, it was very peaceful Dad, Myself and Mums best friend were with her.
Rest in Peace Mum Love you always. We are saying our goodbyes to her next Thursday 24th May, I know the day will be so hard. Still can't believe She has…[Read more]

I was so saddened when i read your post..my heart goes out to you and your family at this sad time.

with much love michelle x x

Please give Steve a HUGE WELL DONE from me, that is such fantastic news to here. Dont think i could have done that and im the fit healthy one. You must be soooooooo proud of him.
with much love michelle x x

I am so sorry that you have had to join this site, sounds like you have been thrown in at the deepend with all this…….if it is any consolation, my Mum was diagnosed with MM in july 09 at 64, she was in hospital for around 6 months, she went from being a healthy person that was always on the go, to this extremely poorly lady. She…[Read more]

as you know mum has tried numerous painkillers, she is quite settled on methadone and oxynorm, good luck and hope you get the pain sorted quickly.
Are you on anything like gabapentin or pregablin? they are for bone pain.
with much love michelle x x

I think it is a fantastic idea, my mums specialist nurse suggested that to me when my mum was first diagnosed, to keep for my children, as they are very close to their Nan. I dont think anyone would be upset by this, as you are doing it for your children. good luck.
with much love michelle x x

I dont get on here as much as I would like nowadays, but just thought I would update you on Mum……Well looks like we are in 3rd relapse now!!! however, feel quite positive (I think) Mum is still on revlimid we went to hosp last monday and thats when they hit us with it. All blood counts were low HB 8.3, neutrophils 0.6, white cells…[Read more]

WOW that is fantastic news, I dont get on here much these days, but when i saw your post just had to comment. Well done and I am so pleased for you and Janet. Long may it continue. with much love michelle x x

So sorry for your loss, I am sending out lots of hugs and loves

Michelle x x x

I think that being nursed at home all depends on whereabouts in the country you live, here in Sheffield we have a fantastic service (which i have to add that I work for!!) We are part funded by Marie Curie and the rest is funded by the nhs (hence my contract is with the Nhs)we are a unique service and cover patients on a 24hr basis…[Read more]

That is a lovely message to families and friends that have loved and lost.

with much love michelle x x

My mum has myeloma diagnosed in july 2009 at the age of 64, I was told then that they dont stage this type of cancer anymore…not quite sure why.
I just wondered why you feel that you cant talk to the consultant? My Mums is fabulous I just make an appointment and he answers all my questions with such honesty, I am also in constant touch…[Read more]

just wanted to say hello and welcome you to the site……as i say to all the new comers you are not alone, and we all try and do our bit to help.

with much love michelle x x x

just to say that my thoughts are with you at this very sad time…..cant believe that i have not been on here for a couple of wks and then found 2 very sad posts.
with much love michelle x x x

I have just read your post and just wanted to send my love and my thoughts are with you at this very sad time.

with much love michelle x x x

with much love michelle x x x

I have been much the same as Debs, just didn't and don't know what to write!!

Do want you to know that I am thinking of you and Janet.

Keep positive.

with much love michelle x x

I am so sorry to hear about your loss.

sending you ((((HUGS)))

Yep life is so very very cruel sometimes. I wish I could say more, but nothing I can say will make life easier at this sad time.

love to you and your family, thinking of you all.

with much love michelle x x

What Fantastic news, I am so really pleased for you.

look after yourself

with much love michelle x x

There is nothing set in stone about the grieving process, everyone does it in their own time in their own way, dont feel guilty that will do you know good.
Whether you change your home or not Michael will still be with you in your heart and memories.
keep going your doing well.
with much love michelle x x

Lovely to hear from you, glad you are ok. I too have been wondering how you are, keep in touch.

with much love michelle x x

Good to hear that your mum is feeling fit and well, and just to say that I hope your scans are clear, you must be feeling really freaked out by the whole process, and yep work certainly does have its bonus points sometimes.

Good luck and keep us posted when you get your results.

with love michelle x

sounds like your doing really great, especially seeing as no consultant appointments for 8 wks…WOW….fantastic. As Bridget says I hope that your pics show nothing more than creaky bones! Good luck.

with love michelle x

Well if I can bring a smile to someones face then I'm doing my job right on here lol!!

My Mum calls them her nashers!!

I cant stand the bloomin things, be hopes I never have to have them, cos I have a real phobia with them ha ha.

but will defo mention the toothpaste and see whether they think it is worth while trying it…[Read more]

Mum didnt seem to have any side effects at all, she is still much the same, the tiredness seems to be getting worse not better tho!!

No point in telling Mum about the toothpaste she only has 3 of her own teeth and the rest are falsies lol, but she would much prefer it if the last 3 just fell out.

much love michelle "Onwards and…[Read more]

Never feel guilty, we are all different and all need to know things at different stages, not one person is the same. You can do your own research, but it doesn't mean you have to tell your brother, this is your private time.

with much love michelle x x

Yep dont i know that, at the mo my eldest going thro something similar from his own email!! which we are trying to prove that he did not send, its driving me nuts! how do people do that?? and why?? My son is really depressed over the whole thing and he is only 17 and he has been suspended from college cos of it! I am so upset and cant…[Read more]

I think i agree that is defo a scam mail, be careful!! I would ring Myeloma UK I think and ask them? Please don't answer that email, sounds very dodgy to me, as far as I am aware no one in myeloma uses hotmail, they all have their own email thro myelomauk.

Please let us know what you find out

with love michelle x x

I can now confirm that the infusion Mum had was Zometa, I am sure thats not what the specialist nurse said, but hey ho I was definately in a non listening mode yday!! It took around 30 mins all in all as she had already had her blood tests on wednesday, she is back on magnesium cos thats low, but other than that she is well, and managed…[Read more]

Gaye that could may well be it!! was not really taking in what she said, which is not me……got lots going on at the minute, Not that that should be an excuse really!! I am hoping to get up to the hospital today, so will try and get the proper name for it. Ha ha yep Onwards and Upwards certainly should have been the new name. Please…[Read more]

Mum had her check on Wednesday at clinic, and was phoned by the hospital yday to go in today for an infusion, this is for bone strengthening and should help with the pain. Andrea specialist nurse phoned me last night for a quick chat about it, seems like a good thing, but i have not heard of them before. Has anyone else had them (sorry…[Read more]

What fabulous news, great to hear! Dont do too much, take it easy with the cycling.

with love michelle x x

It is awful and comes as such a blow when someone we love is diagnosed with Myeloma. My Mum was diagnosed in july 09 at the age of 64, how old is your brother? My mum herself buries her head and so does my dad, I joined this site not long after she was diagnosed and found help, support and most of all…[Read more]

Sorry to hear that you have had your worst fears confirmed, I am wishing you look for monday. Keep touch and let us know how you get on.

with much love michelle x

with much love michelle x x

Just a little update, Mums proteins have come down to 4 I am so pleased, Revlimid is working well!!! She is still very tired and does have increased pain, She has been referred back to the palliative pain team to have a look at her pain relief, she is on regular methadone and oxynorm for breakthrough pain relief, She is taking the…[Read more]