[mickeymooParticipant]

Hi Phil,
Hope you are well:-) I'm due to have my SCT
JAN/FEB @ coventry walsgrave.
Five more chemo to take thats my 6th cycle stage1 finished
I've been so luckey they have found mw a donor my
two younger brothers did not match,I was shocked when
my wonderful Dr M gave me the good news.
The donors SCT planned JUNE/JULY @ B'ham QE.
I really hope you are doing fine,90% of what I've been told
goes in one ear & out the other :-S It will all sink in soon.
I could do with a book on what all you nice MM post all these
short letters eg.MM,SCT,BMB,I no I'm in for a rough time next
year but I aint going to let MM beat me for the sake of my 3
brill kids.

Good luck Mike

[mickeymooParticipant]

Hi Chelle,

I would love to join your group I've posted my details on myeloma uk
I'd like you to no I'm on stage 6 MXI trial my SCT jan/feb & I've
been so luckey my lovley Dr told me that they have got me a donor she
told me thats looking at june/july if all goes well.
I look forward for your reply, Burton's not far for me to travel from
Polesworth.

All the best Mike x

[mickeymooParticipant]

Hi Angiejayne,

I hope all the treatment you have goes all well & good:-)
I read your email & yes we are on par my M proteins were
high 80's now down to 7.
Just to let you no I saw my Dr a couple of weeks ago & she
gave me great news they have found a donor 😀
Which gave me a bit of a shock so its all hands on deck
next year.My SCT jan/feb then junr/july donors SC I no it
will knock me about big time & I will do my best to get back
on my feet.
All the best Mike x

[mickeymooParticipant]

Good for you Babs 🙂

I know how you feel I get so frustated just try & keep 🙂
I KNOW I'm in for a rough time when I start my SCT jan/feb the
brilliant news I recived the other week was that they had found
me a donor,my two younger brothers did'nt match.
DST june/july if all goes well.
My aim is to run the Great Northern Run 2014 for Myeloma.
My heart goes out to you & all the wonderful people with our
condition.

Best Wishes Mike x

[mickeymooParticipant]

Hi Shron,

You've done so well to get through all pain & suffering
I no I'm in for a hard time when I start my SCT.I just no
I've got no choice & what ever they throw at me its got
to be done.
Just let you my Dr told me the injuries I got in the RTA
& my mum having BC did not trigger MM.
I saw Dr Cook at QE hospital B'ham he told me about the
three options that I would have after my SCT until a donor
is found.
I talked to my Dr about these options she said forget them,
the option she told me they were going for was a donor.
I thouught ok maybe next year fingers crossed because my
two younger brothers did not match.
When I went to get stage 6 chemo she told me they had found
me a donor !!! 'shock' Now I'm more determined to get back
to my old self,I'll let you no how things go.

Mike x

[mickeymooParticipant]

Hi,
Hope Melvin's treatment is going well I'm on my stage 6 finish
Dec 9th hopefully a break from same old tablets,injectoins I hope.
Will have to wait and see what Dr M as to say
Quick guide for me next year,my sct jan/feb GOOD NEWS they have
found me a donor 😀 thats planned june/july.

Best wishes Mike.

[mickeymooParticipant]

Hi Mavis,
Just to let you no I saw my brill Dr last thurs
yet again I'm doing so well with the trial drugs
its Mr GOUT if it was'nt for that I no things
might to a lot more pain free but I will take anythig
to help me & others.
Next Jan/Feb start my SCT I no there will not be many 🙂
but I'll do my best for my 3 children & partener,

Cheers Mike x

[mickeymooParticipant]

Thanks for your reply now on stage 5, then 6 next late Jan/late Feb
next year.
Like you said stay positive I agree 100% I'm so pleased for you both
shame MM was attacking my bones for 2 years which meant I had stage 3
I no we all get there,I no when I start my SCT I'll have some bad times
but I'll get through It for my 3 kids who I love & adore 😀

Thanx Mike

[mickeymooParticipant]

Thanks for the reply I'm glad Colin has got through SCT,when I
finish my 6th cycle dec 9th I've got few weeks to get ready to
go through my SCT late Jan/start Feb.
Things would be a lot pain free without the gout saw my Dr last
thurs she told me I'm doyng really well like you said Viki we've
just got to keep on going the only way is up 🙂

You'll both be ok,we will beat this

Mikex

[mickeymooParticipant]

Hi Dave,
Thanks for your reply I no when you have your check ups
I no It will all be good news your a strong guy.
I'm now on my stage 5,then no 6,then get my self ready
next Jan/Feb for my SCT.
Saw my Dr last thurs she told me I'm doing really well
but coz of the 'gout' my body does not agree I'll just grit
my teeth & carry on.
Wished I would of got details of this man & his lovley
wife when I was having my BS,He is 71 & found out he had
MM 8 years ago. M has came back I no he will ok like
you Dave got the T – shirt & still going strong,

Hope It all goes well for you Dave 🙂

Kind reguards Mike

[mickeymooParticipant]

Hi Tom,
Sorry for late reply but the gouts not playing 🙂 I've been told
once I was told I had MM I had stage 3.
Did your SCT go ok Tom,I hope It all goes well when I start my
SCT,as long as all the trial drugs are working I don't mind I'll
do anything to help beat MM,

Cheers Mike.

[mickeymooParticipant]

Sorry for the late reply I've been off my feet due to the treatment but my Dr told me last thurs I'm doing relly good,but my body thinks differnt'gout' :-/ but I'll smile like I mean It with my partener.
I have just stsrted stage 5,1 more & then get my self ready next Jan/Feb to have my sc sorted.
I hope its all going well for you both,
Thanks for the reply

Mike
PS:I'm looking forward when I can meet people with the same condition I
would off loved to have been there @ the hotel/nec next time I'll be
there.

[Author]

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