mikex

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  • #116918

    mikex
    Participant

    Suzi

    I don’t know why I’ve lost my appetite. I suppose the dose of cyclophosphamide is the prime suspect; that was four weeks ago. I’m 62.

    I hope your harvesting goes well.

    Mike

    #116900

    mikex
    Participant

    Dear Wifeof

    Week beginning 28th July. I have spent the last week in “work-up ” with a bone marrow biopsy, lung and heart tests and blood tests. If all are OK then I get the green light next week.
    Have lost my appetite and taking a lot of Complan drinks with milk to try and keep strength up.

    Mike

    #116630

    mikex
    Participant

    Sarah

    Re food etc.  The nurses brought me tea and biscuits.  I don’t know if they could have rustled up a sandwich but my wife went and got one at one of the JR hospital cafes.   As you say it varies from place to place.  In the Churchill Outpatients , a trolley comes round with food and drink.  They did put  canulas in my arms.  I’m having my SCT at the Churchill ; I’m pretty familiar with the place by now !

    Best of luck with the harvesting.

    Mike

    #116603

    mikex
    Participant

    Dear Sarah

    I had stem cell harvesting 2 weeks ago.  I  was told to expect two days of collection but fortunately they got all they needed on Day 1, in a 4 hour session.  This was at the Oxford JR hospital.

    The worst part of the whole process was in the week previously.  First the cyclophosphamide they gave me on Day 1 of the preparation made me feel pretty listless and low for two days.  Then 48 hours before the actual harvesting ( on Day 10 of the procedure ) I started to get a pulsing pain in my back.  They had warned that this was a possible side effect and a “good sign” as it was caused by the pressure of the newly created cells ( I had been injecting myself with Growth factor all week).  I took pain killers ( paracetamol and codeine) and after 24 hours they eventually stopped the pain altogether.

    I was connected up to the stem cell extraction machine through a line in each arm.  I was in a reclining chair and the nurses kindly arranged pillows so that I could read a book, eat and drink etc.   So for me the harvesting was the easiest part of the whole procedure.   Hope this helps and that things go well.

    Mike

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