missray2012 started the topic 9 months since SCT … in the forum Treatment 11 years, 11 months ago
Hi everyone. My mum had her transplant In August 2012 and was then randomised to no drugs. All of her bloods have been great but when we went on Monday the levels of whatever they measure had risen to a 2. I can't help but feel so upset and disappointed. Is this the beginning of it coming back? ? I worry that she will be put on maintenance drugs…[Read more]
missray2012 replied to the topic Mum just diagnosed on Friday in the forum Newcomers 12 years, 6 months ago
Hi Emma,
I'm 27 and my Mum is 64.
about 2 years ago my mum had problems with her ribs and was told that she had simply pulled a muscle whilst digging.
After numerous trips to the Doctor and several types of pain killers later, she demanded a chest x ray .
Thats when we got the phone call from the doctors surgery for us all to come…[Read more]
missray2012 replied to the topic Someone to talk to in the forum Newcomers 12 years, 7 months ago
Hi Kerrie,
I cant seem to private message you. Drop me a message with your email.
Rach xxx
missray2012 replied to the topic Someone to talk to in the forum Newcomers 12 years, 8 months ago
Hi Kerrie,
All of my friends parents are in their late 40's/early 50's whilst my mum is 64, coming up to 65 so its really hard to find someone who understands!!
Where is your mum being treated? We are at nottingham city hospital.
During my mums 4 cycles of CDT she did have a couple of side effects. She had a rash and the steroids seemed…[Read more]
missray2012 replied to the topic Someone to talk to in the forum Newcomers 12 years, 8 months ago
Hi Mavis,
You are right! We spent the whole of last Christmas thinking it was bone cancer and that there were tumours elsewhere.
Once we had the diagnosis of Myeloma (be it not great) we were relieved to see that it wasn?t immediate death.
The doctors were shocked that she had Myeloma as they said it was quite rare for someone to have a…[Read more]
missray2012 replied to the topic Someone to talk to in the forum Newcomers 12 years, 8 months ago
Hi Sandra,
Thank you so much for your message.
I guess you are right – the cancer doesnt care who it effects.
I hope you, your husband and family are well.
I'm finding the forum really useful with regards to support/answers 🙂
Rachel x
missray2012 started the topic Young Carer…. in the forum Carers 12 years, 8 months ago
Hi all,
I am 27 and my Mum (64) was diagnosed with Myeloma in January.
After 4 cycles of tablets, she had her stem cell transplant 2 weeks ago.
I'm finding things pretty tough and was wondering if there was anyone of a similar age to me going through the same thing? My friends are great (The majority of their parents are in their late…[Read more]
missray2012 replied to the topic Someone to talk to in the forum Newcomers 12 years, 8 months ago
Hi Tom ,
Thank you for your kind message.
Thinking about it – the SCT was 3 weeks ago as she has been home a week already. Within days of being home she was doing the washing and ironing and pottering around in the garden (very naughty!) and we cant seem to stop her!
She hurt her rib a couple of years ago digging in the garden and after…[Read more]
missray2012 started the topic Someone to talk to. in the forum Newcomers 12 years, 8 months ago
Hi all,
I am 27 and my Mum (64) was diagnosed with Myeloma in January.
After 4 cycles of tablets, she had her stem cell transplant 2 weeks ago.
I'm finding things pretty tough and was wondering if there was anyone of a similar age to me going through the same thing? My friends are great (The majority of their parents are in their late…[Read more]
