Myeloma Forum | misswoosie | Activity https://forum.myeloma.org.uk/members/misswoosie/activity/ Activity feed for misswoosie. Sat, 11 Apr 2026 01:04:11 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c18b4157884ecb7b0268efb3022f4071 misswoosie started the topic IgM Paraprotein and Anti-MAG antibodies in the forum Related conditions https://www.myeloma.org.uk/forums/topic/igm-paraprotein-and-anti-mag-antibodies/ Fri, 30 Mar 2018 13:30:31 +0100 Could anyone out there shed any light on Anti-MAG neuropathy? I have a small amount of IgM paraprotein and have just found out from my Haematologist that I have raised Anti-MAG antibody levels. Fits with my some of my symptoms ie pins and needles in feet and hands and sensations that something is stuck to my foot when it’s not. Also ataxia (poor…[Read more]

]]> 766fdd5c02e5fc7d2f9a897baa008c3f misswoosie started the topic Anti MAG antibodies in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/anti-mag-antibodies/ Thu, 29 Mar 2018 23:32:32 +0100 Anyone out there have raised Anti MAG antibody levels? I had a paraprotein (IgM) detected  over  a year ago and was just being followed up by GP but as I had ongoing health problems I asked for a re referral. Because I mentioned some problems with feeling in my feet and balance he checked my Anti MAG antibody level and they’re raised.

He’s r…[Read more]

]]> f0a5d66185c53e1d21776197f1f8acaf misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-134696 Thu, 24 Aug 2017 11:09:03 +0100 Thanks Graham. I’m not under follow up at a hospital, which is why I asked for a re-referral  to haematology a few weeks ago. I don’t have confidence in the GP’s and they’ve never discussed paraproteins with me and I haven’t  seen a haematologist since the paraprotein was picked up last November. As I said before, I used to be a Nurse P…[Read more]

]]> 48ddad4c1d015f60e6c45750122308e5 misswoosie replied to the topic 'Telephone Appointments' - Subject Access Requests in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/telephone-appointments-subject-access-requests/#post-134695 Thu, 24 Aug 2017 10:20:36 +0100 Have you spoken to PALS?

 

]]> 9bca53e0e50b796c51dc2f310d21fbde misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-134664 Thu, 17 Aug 2017 12:22:11 +0100 Hi everyone. Just read through all my posts and realised I din’t say that my para-protein is in the IgM immunoglobulin. I only have measurement for IgM, so I assume that the monoclonal protein is so small it’s not measurable. Interestingly my IgM level is right at the top of the normal limit and had gone down between March and June (I don’t know…[Read more]

]]> c4dc1ccd1d836071b3eb13ac7aaf5700 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-134642 Wed, 16 Aug 2017 00:45:54 +0100 Sorry for delay, but I had to reset my password and it was so fussy about password strength  and I was so tired at the time with brain fog I just gave up! I’m just waiting to go for my next lot of monitroing bloods and did manage to get GP (he was running 20mins behind so just wanted us out) to re refer to haematologist so have appt in October.…[Read more]

]]> 9270dab57e6c09bbad50795c1c0df8d9 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-133700 Tue, 06 Jun 2017 11:48:26 +0100 Good that you had all the tests by a fertility specialist. I think stress affects us more than we think. you hear of people who have problems trying to conceive and go through fertility treatment with no success and then after they stop all the treatment  they conceive naturally. I hope that you can get things sorted and that the monster protein…[Read more]

]]> a35533757ed6cb3fe1b3571b404d1f44 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-133695 Tue, 06 Jun 2017 09:10:12 +0100 Lucy, so sorry about your miscarriages. Not surprised you were stressed and anxious afterwards.

I don’t know much about MM and all these protein levels etc even though I was a Clinical nurse specialist because my area then was anticoagulation (managing people who were on anticoagulants) and Deep vein thrombosis etc so wondering if  you’ve been…[Read more]

]]> a4e676d41a0b23e3bb724a361e4b8c33 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133691 Tue, 06 Jun 2017 07:56:45 +0100 Sorry , meant to say, have they checked your urine? Mine was normal in March, but they didn’t do one in May and I thought they should have done.

 

]]> fa721ac237fb74553007b0a06a526218 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133690 Tue, 06 Jun 2017 07:53:53 +0100 Hi Lucy,

Yes, I’m thinking that it’s non quantifiable. On the May results it said ” previous non-quantifiable ……….” (Sorry- have  put my results out of sight delibarately until after hols). I guess I haven’t been diagnosed with MGUS either then. When I got the phone call from surgery out o fthe blue to go and have bloods done I asked GP to…[Read more]

]]> 718cacf0debc9f3a3ae24cdc595264bd misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133687 Mon, 05 Jun 2017 23:09:43 +0100 Hi Lucy,

Well, yes, but only because I asked for a print out, and then they haven’t given me the full results from March, so I’m a little confused. I’m astounded actually. GP has never mentioned anything about the paraprotein ,explained what they mean, or asked to see me to see if I have any new symptoms etc (not sure what symptoms if any are…[Read more]

]]> e394a3ad917d8c08b8b42f906bed2740 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133558 Thu, 25 May 2017 21:43:37 +0100 Hi Cygnet,

Thanks for the reply. I spoke to the GP yesterday and the blood test in March was positive ie has gone from “a possible small band in the gamma region” (and haematology laboratory suggesting it was checked in 3 months) to having a measurable quantifiable paraprotein requiring serial bloods 3 monthly for a year in March.However, GP…[Read more]

]]> 03939ac4f884885dba7f59a3ef32a7dd misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133510 Tue, 23 May 2017 23:08:04 +0100 Thank you. Health hasn’t been my normal for over a year now. I don’t know what the reuslt of the last blood and urine test for paraproteins was ( beginning of March). The GP surgery told me know further action was required when I called for the results, so I assumed there were no paraproteins. In Nov last year the serum electrophoresis report said…[Read more]

]]> 64185eacd10b3342f7cfd2a35bdbcf4b misswoosie replied to the topic New system to measure Paraproteins in the forum General https://www.myeloma.org.uk/forums/topic/new-system-to-measure-paraproteins/#post-133482 Mon, 22 May 2017 16:28:53 +0100 I know this thread is older, but thiught I’d respond anyway.

The message “If the pp’s are above 5 after October 2016, then there could be a 20-30 per cent shown increase” would be from the Haematology Laboratory. They’ve probably changed their analyser (machine) that they use to do the blood tests on. The other option is that they’ve changed t…[Read more]

]]> a418081a7ff940b5d4d99e151b3859e5 misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133480 Mon, 22 May 2017 15:18:11 +0100 Hi there. Feeling somewhat shocked. Just received a phone call from GP’s surgery asking me to make an appointment to have bloods checked as they’ve had a letter from Haematologist saying that(according to receptionist) “bloods need to be checked 3 monthly in the first year”. Now I understood that’s the case with a positive test (although surgery…[Read more]

]]> ed08ade9d4c8fba2ac93f860bbd16a6e misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-132167 Wed, 08 Mar 2017 09:23:55 +0000 Hi and thank you Cygnet. I spoke to GP reception yesterday morning regarding bloods and was told GP had said no futher action required,so I assume that means no para protein. The haematologist (in letter to GP after my OP appt in Nov last year) suggested that GP should check blood and urine in 3 months time and re -refer to haematology if they…[Read more]

]]> b3e80d53c23a504bde59697fb6c8c57b misswoosie replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-132167 Wed, 08 Mar 2017 09:23:55 +0000 Hi and thank you Cygnet. I spoke to GP reception regarding bloods and was told GP had said no futher action required,so I assume that means no para protein. The haematologist (in letter to GP after my OP appt in Nov last year) suggested that GP should check blood and urine in 3 months time and re -refer to haematology if they were positive. I’m…[Read more]

]]> b3be986d2a2f6c3d7d7b164fac39d4d3 misswoosie started the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/ Mon, 06 Mar 2017 22:46:46 +0000 Hi,

I’m new here. I was referred to a Haem by GP because blood tests for a suspected DVT detected abnormal (extended) blood clotting times which after being checked by GP twice over the next month were still abnormal. I’d seen my GP several times in the previous year because of fatigue and extreme tiredness, joint pains,rib pain, irregular heart…[Read more]

]]> 830cea3ec0b9feb6b9fb2cab6e56483e misswoosie became a registered member https://forum.myeloma.org.uk/activity/p/48818/ Mon, 06 Mar 2017 22:14:10 +0000 0