Myeloma Forum | misswoosie | Friends Activity https://forum.myeloma.org.uk/members/misswoosie/activity/friends/ Activity feed for misswoosie's friends. Sat, 11 Apr 2026 01:04:11 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e2dffb7c474091b4bd575d88c4d40ed6 lucifer and misswoosie are now friends https://forum.myeloma.org.uk/activity/p/51417/ Mon, 30 Oct 2017 23:40:03 +0000 0 e919f11d820a0d24e8611fb09bbd0614 lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-134314 Sun, 23 Jul 2017 07:31:18 +0100 Hi Susan, how are you? Did you get a follow up with your hematologist? Xx

]]> 1e83c624d6302cab57b34567b3cef7e3 lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-133697 Tue, 06 Jun 2017 09:50:49 +0100 Thanks Susan, I’m in a much better place now but typically now have this to deal with. My husband and I went to a fertility specialist and got a thorough check and everything was ok. Only thing that showed was low progesterone and I’ve been prescribed pessaries as a result. I was extremely stressed out last year and I believe the miscarriages were…[Read more]

]]> 60ae9a99f827de1ffa1243eaeec8cc05 lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/page/2/#post-133693 Tue, 06 Jun 2017 08:29:08 +0100 Should also say that I’m from Ireland so maybe things are done a little differently here.

]]> 3995cc80c1d07ef6ed6dffbab1388b59 lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133692 Tue, 06 Jun 2017 08:27:54 +0100 Hi,

My urine has been checked but the results aren’t back yet. The only result I have from that is the normal protein level is very low, which is good. Could be another few weeks for the urine electrophoresis as there’s a backlog apparently. Had the 24 hr collection one…vile. Also had full skeletal x rays, all normal thank God.

 

I had two…[Read more]

]]> 337e8ac5a74b214e3043eedc1e9f5302 lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133689 Tue, 06 Jun 2017 06:10:01 +0100 Forgot to say, I haven’t been formally diagnosed yet. MGUS has been mentioned as the trace paraprotein is still there. The hematologist has sent a letter to GP to repeat test in November.

]]> 996cd73e13b56e4395c8d9fc74cc5d3e lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133688 Tue, 06 Jun 2017 06:08:01 +0100 Hi,

It’s horrible to feel like you’ve to chase up on these medical professionals. It seems, from what I’ve read and my own experience, that many GPs have never even heard of MGUS.

As for me, I’m 37 and I had bloods taken in January. One of the thyroid tests had a low background activity reading which can suggest low immunity so it was reflexed…[Read more]

]]> c06d3024b2e9f73a2877779517a367d1 lucifer replied to the topic "Possible" MGUS 3 months ago,awaiting results of repeat blood/urine in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-3-months-agoawaiting-results-of-repeat-bloodurine/#post-133684 Mon, 05 Jun 2017 20:51:33 +0100 Hi,

How frustrating for you! The lack of communication is astounding. Did you get any results back yet? The waiting is so horrible.

My follow up tests are in November, had a trace reading in January and May.

Hope you’re ok.

Best wishes,

 

Lucy xxx

]]> 10fd48e7d8db0cbd3b944537167364ce lucifer posted a new activity comment https://forum.myeloma.org.uk/activity/p/41752/#acomment-49213 Fri, 31 Mar 2017 15:18:31 +0100 Any update Pav? Best wishes

In reply to - pavvyg became a registered member ]]> 3af9c29cd57eac68aa97f40aca213768 lucifer became a registered member https://forum.myeloma.org.uk/activity/p/49212/ Fri, 31 Mar 2017 15:00:41 +0100 0