Myeloma Forum | misterboy | Activity https://forum.myeloma.org.uk/members/misterboy/activity/ Activity feed for misterboy. Sun, 12 Apr 2026 03:46:48 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 fb9a0a10b2fa27c42594e220efcd7f8d misterboy replied to the topic Vision Problems in the forum Side-effects http://www.myeloma.org.uk/forums/topic/vision-problems/#post-124768 Thu, 29 Oct 2015 11:24:58 +0000 Hi Scott.  It is very interesting that you have posted the issue you are having with your eyes.  I too have experienced something very similar.  My eyes struggle to focus and keep up with whatever is going on inside my brain to the point my eyes feel strained.

As a patient of a similar age, I am very interested in your story – how long ago was yo…[Read more]

]]> 7f3d7ea01117da1a38b85320a4ce158c misterboy replied to the topic Not sure what is happening after my Plasmacytoma in the forum Related conditions http://www.myeloma.org.uk/forums/topic/not-sure-what-is-happening-after-my-plasmacytoma/#post-124767 Thu, 29 Oct 2015 11:02:57 +0000 Hi Liz.  Its tremendous to hear you have made such good progress, it sounds like you went through a lot in 9/10 months but have come through it well.  I am particularly impressed that you are playing tennis again – if there is one thing I am missing it is my sports; I have been doing a lot of walking and some on my exercise bike but that is not th…[Read more]

]]> 113863ae9aad54f170786671f434a8f4 misterboy replied to the topic Not sure what is happening after my Plasmacytoma in the forum Related conditions http://www.myeloma.org.uk/forums/topic/not-sure-what-is-happening-after-my-plasmacytoma/#post-124533 Tue, 06 Oct 2015 19:02:08 +0100 It does seem slightly different, i had surgery to remove the plasmacytoma as it was wrapping itself around my spinal cord, following that I had the bone marrow biopsy which I gather was ok but my light chains have been steadily climbing since then despite the radiotherapy too.  Yes I am under a haematology specialist at leicester.

All the very best.

]]> fd911631a6ecd0531c1ac337cfb14c61 misterboy replied to the topic Good News stories in the forum General http://www.myeloma.org.uk/forums/topic/good-news-stories/#post-124532 Tue, 06 Oct 2015 18:57:50 +0100 Hi Annlyn and thank you so much for your reply and support to my idea.  You are absolutely right, there are some good news stories within the forum, the problem is you have to wade through to find them!!  I hope the idea gets further support.  Great to hear you have been in remission for one year now and that your experience at Newcastle Fr…[Read more]

]]> ed1c223c8b54fce269754bbc94965f49 misterboy started the topic Good News stories in the forum General http://www.myeloma.org.uk/forums/topic/good-news-stories/ Tue, 06 Oct 2015 10:20:40 +0100 As a relatively new patient, I have found the site and the forums immensely helpful, however as a generally positive person I wondered if it would be possible to suggest that one of the forum subjects be “good news stories” where people can give their experience of remission, treatment changes, service provision from their local NHS providers,…[Read more]

]]> 109e8da165724238412eabeffcbe994c misterboy replied to the topic Not sure what is happening after my Plasmacytoma in the forum Related conditions http://www.myeloma.org.uk/forums/topic/not-sure-what-is-happening-after-my-plasmacytoma/#post-124524 Tue, 06 Oct 2015 10:10:39 +0100 Thank you for your response Avril.  I will indeed be speaking to my consultant about it but was really looking to gain an idea of other people’s experience of when/what point treatment started in terms of kappa/lambda ratio plus other symptoms (if any).  For example is there a ratio that would be treated even if there are no other symptoms?  …[Read more]

]]> e8c689f137a7e722cecfcfe81fe3dcc3 misterboy started the topic Not sure what is happening after my Plasmacytoma in the forum Related conditions http://www.myeloma.org.uk/forums/topic/not-sure-what-is-happening-after-my-plasmacytoma/ Mon, 05 Oct 2015 14:01:20 +0100 Hello everyone,

A relative newbie here who is somewhat confused and hoping someone out there might be able to help from their experience and/or knowledge.

I was diagnosed with a plasmacytoma in my thoracic spine in February this year which needed emergency surgery to remove it.  Following some dexemathozone, I then had 5 weeks of radiotherapy.…[Read more]

]]> efc465ce889da8b59b57ab43c7a3da3f misterboy became a registered member https://forum.myeloma.org.uk/activity/p/41150/ Mon, 28 Sep 2015 14:38:19 +0100 0