Hi sue,

may I ask why you have to go to India to get this ? My mum is starting this drug next week here.

Thanks

sara

Hi this sounds so familiar yet different – my mum has myeloma and I am her carer (I’m 52- mum 79)but my dad is being so difficult and seems jealous when we are concentrating on her and gets so cross with her for being tired, slurring her speech etc and then has symptoms (genuine health issues but why make a fuss of them)to take attention of her I…[Read more]

Alexis I feel so badly for you. My mum is poorly with mm and since diagnosis and caring for her for last few months I don’t know what I would have done without my husband of 30 years who is 52 ! I can not imagine what this must have been like for you and you need to talk. I have seen some horrendous things with my mum and been close to the end a f…[Read more]

Hi sueg, it was if I had written this post ! My 79 year old mum was diagnosed in sept and had 4 x day carers coming in to provide end of life care as she had 12 weeks max. As chemo didn’t work. She detierated quickly and my children and I took her to the seaside in a wheelchair and then started chemo injections ( why ? we couldn’t work out whe…[Read more]