Myeloma Forum | natdarke1 | Activity https://forum.myeloma.org.uk/members/natdarke1/activity/ Activity feed for natdarke1. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 a342f76ec880a99f0dbb4bb8f8ed1a6d natdarke1 replied to the topic Kyprolis (Carfilzomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/kyprolis-carfilzomib/#post-137635 Thu, 12 Apr 2018 10:16:36 +0100 Hi

My mum has light chain multiple myeloma and had a SCT in 2015. She has recently been told her light chains have increased. They seem to be increasing by about 10-13 per month, now sitting at 60 which I know is low, however, the consultant convinced the myeloma is active again. Its all very worrying and uncertain. She has now had biopsy and…[Read more]

]]> 0e9c91c44754b95d4dec9c845d6f68ca natdarke1 replied to the topic Curcumin in the forum General https://www.myeloma.org.uk/forums/topic/curcumin-6/#post-137332 Wed, 07 Mar 2018 07:08:43 +0000 Hi Paul,

My mum has light chain MM and been on curcumin

For about 3 months now. We get it from Holland and Barrett

natalie

]]> c179d175c36ce28d9c4ae47c392e4423 natdarke1 replied to the topic Increased Light Chains in the forum Treatment https://www.myeloma.org.uk/forums/topic/increased-light-chains/#post-137331 Wed, 07 Mar 2018 07:05:11 +0000 Hi Scott,

i didn’t know that re light chains, that’s good to know for when we go back again to the hospital as mum has had a bad cough too so wonder if that could be a reason?! Let me know how you get on….

natalie

]]> 61114833ee6eb2fdc27b4040b8b9b1db natdarke1 replied to the topic Mum recently diagnosed - what to do? in the forum Under 50s https://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-what-to-do/#post-137284 Tue, 06 Mar 2018 08:35:39 +0000 Hi Tahlia,

how is your mum now? My mum was diagnosed just before Christmas 2014. She had a lot of symptoms that had been ignored by GP but it was still a big shock… Especially as none of us had heard of myeloma before! I found this website so useful… I also signed up to do a 10k in the January 2015, to raise money for myeloma. This helped us…[Read more]

]]> 80e2c2e33b855cb2a7a0eae28362c1a8 natdarke1 replied to the topic Increased Light Chains in the forum Treatment https://www.myeloma.org.uk/forums/topic/increased-light-chains/#post-137282 Mon, 05 Mar 2018 22:41:13 +0000 Hi Scott,

my mum has light chain MM and underwent chemotherapy followed by SCT in September 2015. We just found out she has fractured shoulder blade and subtly raised light chains (34). Consultant said they would have ignored increased light chains if it wasn’t for fracture so awaiting CT scan and biopsy. If anyone has any advice regarding…[Read more]

]]> bc4360eb9f8d68c3603af63527f51597 natdarke1 replied to the topic Starting Stem Cell Therapy in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-stem-cell-therapy/page/2/#post-124472 Thu, 01 Oct 2015 18:01:51 +0100 That’s it! She’s got this raging high temp but seems slightly more lucid than last night! Wish I could sleep next to her as I find night times the hardest, I don’t want to leave her! They do have accommodation for relatives but its normally booked quite quickly by parents of children who are in. We are an hours drive from hospital. I am hoping she…[Read more]

]]> 8dcb100004ccc9bfa5ecfcd35cdfb73d natdarke1 replied to the topic Starting Stem Cell Therapy in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-stem-cell-therapy/page/2/#post-124468 Thu, 01 Oct 2015 13:24:11 +0100 Hi Chris and Ann,

thanks so much for your replies, both of which have given me comfort! She’s just been diagnosed today with an infection so on the antibiotics straight away! I know what you mean about telling people every detail and raising anxiety as one size doesn’t fit all and everyone different…. Think I was just at a low eb this morning…[Read more]

]]> 758b50d4ec31c20eef91a5692c7566b5 natdarke1 replied to the topic Starting Stem Cell Therapy in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-stem-cell-therapy/#post-124457 Thu, 01 Oct 2015 09:18:35 +0100 My mum has light chain myeloma and is in the process of the SCT. This is day 8 since cells were transplanted and she’s quite poorly, very weak, unable to eat, has had quite bad sickness and yesterday the diarrhoea started. We were told this could happen but hard to fully prepare yourself. I am hoping and praying once the GCSF injections start…[Read more]

]]> 1c2498e044b7a779ebf151a558e8a079 natdarke1 replied to the topic Stem Cell treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-treatment-2/page/2/#post-123501 Thu, 06 Aug 2015 06:56:53 +0100 Hi Karen,

good luck with it…. I feel the same as you only still waiting for mums cells to get harvested!! It’s been a lot of back and forth this week but hopefully they will get harvested today. It’s the first hurdle we have faced but still frustrating none the less!! Then we need to wait for a date for transplant….

Natalie

]]> ec5354d1d32b0836a4a71c4cd462ff88 natdarke1 replied to the topic Stem Cell treatment in the forum Treatment https://www.myeloma.org.uk/forums/topic/stem-cell-treatment-2/page/2/#post-123465 Sun, 02 Aug 2015 09:45:14 +0100 Hi Mervyn,

thanks for that. It’s a very long, hard journey to take isn’t it?! At the moment she is 6 days into having the strong chemo…. Cell harvesting is set for tomorrow. Here’s hoping that they collect enough!!! Everyone’s stories are similar but different. Mum was diagnosed with myeloma just before Christmas 2014 and up until then I had…[Read more]

]]> eb7252fa2fa38a5d0ad74e6af7634515 natdarke1 changed their profile picture https://forum.myeloma.org.uk/activity/p/40159/ Sat, 01 Aug 2015 08:38:13 +0100 0 1fd794547271d70d654d1a7c0e568285 natdarke1 replied to the topic Stem Cell treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-treatment-2/page/2/#post-123457 Sat, 01 Aug 2015 08:35:15 +0100 Hi mervyn good luck with it!! My mum is due to have transplant end August and is getting cells harvested on Monday. She is a tough cookie and is doing ok with the strong chemo she has been receiving this week, managing to eat, albeit small portions!!

Hopefully it will all go well!!

Natalie

]]> 13636f2d48ec2792fb7c31f19ef5535c natdarke1 became a registered member https://forum.myeloma.org.uk/activity/p/39343/ Sun, 07 Jun 2015 19:42:10 +0100 0