ness

  • ness replied to the topic SCT in the forum General 7 years, 6 months ago

    Hi Brian
    Thank you for that . We  had a couple of times we had to wait for beds when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it easier .          …[Read more]

  • ness replied to the topic SCT in the forum General 7 years, 6 months ago

    Hi Brian
    Thank you for that we had a couple of times we had to wait when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it easier .              Regards
    Vanessa

  • ness replied to the topic SCT in the forum General 7 years, 6 months ago

    Hi Brian
    <p style=”text-align: left;”>Thank you for that we had a couple of times we had to wait when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it…[Read more]

  • ness replied to the topic Start of treatment VTD. in the forum Newcomers 7 years, 6 months ago

    Morning Dawn .

    Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para…[Read more]

  • ness replied to the topic Start of treatment VTD. in the forum Newcomers 7 years, 6 months ago

    Morning Dawn .

    Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para…[Read more]

  • ness replied to the topic Start of treatment VTD. in the forum Newcomers 7 years, 6 months ago

    Morning Dawn .

    Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para…[Read more]

  • ness replied to the topic SCT in the forum General 7 years, 6 months ago

    Thank you Greg

    I am finding the not knowing things like dates etc , quite hard to deal with will just be glad when we hear. I am bit of a planner and it’s been hard having to let that go. It’s hard letting something else take over .

    Regards

    Vanessa

  • ness replied to the topic Start of treatment VTD. in the forum Newcomers 7 years, 6 months ago

    Hi Dawn .

    His main problem through his treatment has been chest infections, they put him in hospital a couple of times with high temperatures but he had bad pneumonia 12 months ago so that seems to be his weak  spot . He has been mainly tired not many side effects at all , a couple of days after treatment he had what he described as a full…[Read more]

  • ness replied to the topic Start of treatment VTD. in the forum Newcomers 7 years, 6 months ago

    >Hello Dawn
    My Name is Vanessa my husband started treatment in November at the age of 44 and is just completing the VTD courses and waiting for stem cell treatment .  We felt exactly the same petrified but the health care team walk you through each step and are very supportive. If you have any particular questions I could try and answer from our…[Read more]

  • ness replied to the topic Start of treatment VTD. in the forum Newcomers 7 years, 6 months ago

    <p style=”text-align: center;”>Hello Dawn .</p>
    <p style=”text-align: left;”>My Name is Vanessa my husband started treatment in November at the age of 44 and is just completing the VTD courses and waiting for stem cell treatment .  We felt exactly the same petrified but the health care team walk you through each step and are very supportive. If…[Read more]

  • ness started the topic SCT in the forum General 7 years, 6 months ago

    Hello , I was just just wondering if any one knows how long the waiting time is for SCT . My husbands consultant has written to MRI 3 weeks ago but wondered if any one can advise me on the sort of time  frame we are looking at ?

    Thank you in advance of your reply. Vanessa

  • ness posted an update 7 years, 10 months ago

    Just wanted to introduce myself. My husband Matt was diagnosed with multiple myeloma on Nov 11th . It has turned our world upside down he’s an amazing man and at the young age of 44 , we want to try and fight this together

  • ness changed their profile picture 7 years, 10 months ago

  • ness became a registered member 7 years, 10 months ago