Myeloma Forum | ness | Activity https://forum.myeloma.org.uk/members/ness/activity/ Activity feed for ness. Tue, 21 Apr 2026 17:33:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c1d026b04745b25ba7c3fdb1aa90e6c3 ness replied to the topic SCT in the forum General https://www.myeloma.org.uk/forums/topic/sct-8/#post-133245 Tue, 02 May 2017 07:13:28 +0100 Hi Brian
Thank you for that . We  had a couple of times we had to wait for beds when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it easier .          …[Read more]

]]> e4dc9da2e5327db36657e348a018eb19 ness replied to the topic SCT in the forum General https://www.myeloma.org.uk/forums/topic/sct-8/#post-133245 Tue, 02 May 2017 07:13:28 +0100 Hi Brian
Thank you for that we had a couple of times we had to wait when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it easier .              Regards
Vanessa

]]> 6603afd0580ef3968ba72c8fcc4be27c ness replied to the topic SCT in the forum General https://www.myeloma.org.uk/forums/topic/sct-8/#post-133245 Tue, 02 May 2017 07:13:28 +0100 Hi Brian
<p style=”text-align: left;”>Thank you for that we had a couple of times we had to wait when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it…[Read more]

]]> 9814af28516e157ab10fd4573433f2bb ness replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133243 Tue, 02 May 2017 07:01:49 +0100 Morning Dawn .

Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para…[Read more]

]]> 9814af28516e157ab10fd4573433f2bb ness replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133243 Tue, 02 May 2017 07:01:49 +0100 Morning Dawn .

Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para…[Read more]

]]> d77c91fb528f66b0201d2952966b7d98 ness replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133243 Tue, 02 May 2017 07:01:49 +0100 Morning Dawn .

Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para…[Read more]

]]> 3c33169f841804fe8b5519ba283a155a ness replied to the topic SCT in the forum General https://www.myeloma.org.uk/forums/topic/sct-8/#post-133240 Mon, 01 May 2017 19:26:53 +0100 Thank you Greg

I am finding the not knowing things like dates etc , quite hard to deal with will just be glad when we hear. I am bit of a planner and it’s been hard having to let that go. It’s hard letting something else take over .

Regards

Vanessa

]]> 35950baa574529d003ccd631cc996c60 ness replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133239 Mon, 01 May 2017 19:17:12 +0100 Hi Dawn .

His main problem through his treatment has been chest infections, they put him in hospital a couple of times with high temperatures but he had bad pneumonia 12 months ago so that seems to be his weak  spot . He has been mainly tired not many side effects at all , a couple of days after treatment he had what he described as a full…[Read more]

]]> d54ebfefe9b923946a6a9a15bb2e0b74 ness replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133235 Mon, 01 May 2017 18:58:52 +0100 >Hello Dawn
My Name is Vanessa my husband started treatment in November at the age of 44 and is just completing the VTD courses and waiting for stem cell treatment .  We felt exactly the same petrified but the health care team walk you through each step and are very supportive. If you have any particular questions I could try and answer from our…[Read more]

]]> d1b853688507763951b64aa2d38f017f ness replied to the topic Start of treatment VTD. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/start-of-treatment-vtd/#post-133235 Mon, 01 May 2017 18:58:52 +0100 <p style=”text-align: center;”>Hello Dawn .</p>
<p style=”text-align: left;”>My Name is Vanessa my husband started treatment in November at the age of 44 and is just completing the VTD courses and waiting for stem cell treatment .  We felt exactly the same petrified but the health care team walk you through each step and are very supportive. If…[Read more]

]]> 7540d59a77e53e75bc56be87c46ebb5b ness started the topic SCT in the forum General https://www.myeloma.org.uk/forums/topic/sct-8/ Mon, 01 May 2017 11:27:23 +0100 Hello , I was just just wondering if any one knows how long the waiting time is for SCT . My husbands consultant has written to MRI 3 weeks ago but wondered if any one can advise me on the sort of time  frame we are looking at ?

Thank you in advance of your reply. Vanessa

]]> f8b2dd70c6c983ce882a32e1c2fdd05c ness posted an update: Just wanted to introduce myself. My husband Matt was […] https://forum.myeloma.org.uk/activity/p/47902/ Sat, 17 Dec 2016 22:27:28 +0000 Just wanted to introduce myself. My husband Matt was diagnosed with multiple myeloma on Nov 11th . It has turned our world upside down he’s an amazing man and at the young age of 44 , we want to try and fight this together

]]> 0 f0be42df1233c1a9aa2e0d0316f8059e ness changed their profile picture https://forum.myeloma.org.uk/activity/p/47899/ Sat, 17 Dec 2016 22:02:06 +0000 0 df4ece83eb556cd78d0a9692074af7eb ness became a registered member https://forum.myeloma.org.uk/activity/p/47898/ Sat, 17 Dec 2016 21:40:37 +0000 0