ness

Forum Replies Created

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #133245

    ness
    Participant

    Hi Brian
    Thank you for that . We  had a couple of times we had to wait for beds when admitted with infections so I suppose it’s to be expected but I for some reason hadn’t considered that this admission could have last minute hiccups. But I will be prepared now . I would rather be prepared in any of this it makes dealing with it easier .              Regards
    Vanessa

    • This reply was modified 7 years, 6 months ago by  ness.
    • This reply was modified 7 years, 6 months ago by  ness.
    #133243

    ness
    Participant

    Morning Dawn .

    Please don’t worry about the questions i wish I had known about these forums at the start . My husband was admitted straight from outpatient clinic , they wanted to start immediately we had been told the diagnosis a week earlier by orthopaedics in s mobile MI unit . So to be honest numbers didn’t stay with me . I know his para protein were extremely high because that’s what alarmed orthopaedics . He presented with fractures in his back . We haven’t had a final level given yet but from the last blood levels it was very low unable to read it.
    Regards weight gain he had lost a lot as he had been ill for a while previous to diagnosis, so he has gained a bit but not gone overweight. He hasn’t had problems with neuropathy at all .
    I am thinking about you today , I hope your experience mirrors ours because the level of care we have been given is amazing and it helps you cope . Get in touch any time .
    Mood is a funny thing the emotions have been the hardest but regards to mood due to treatment is the dexamethasone gave him a really up beat chatty mood . This is more my true husband due to his back pains he can be quiet  at times . So in an odd way chemo days became our best days . We got out of the house he was chatty . It was very surreal for a while .
    Best wishes
    Vanessa

    • This reply was modified 7 years, 6 months ago by  ness.
    #133240

    ness
    Participant

    Thank you Greg

    I am finding the not knowing things like dates etc , quite hard to deal with will just be glad when we hear. I am bit of a planner and it’s been hard having to let that go. It’s hard letting something else take over .

    Regards

    Vanessa

    #133239

    ness
    Participant

    Hi Dawn .

    His main problem through his treatment has been chest infections, they put him in hospital a couple of times with high temperatures but he had bad pneumonia 12 months ago so that seems to be his weak  spot . He has been mainly tired not many side effects at all , a couple of days after treatment he had what he described as a full feeling rather than sickness but the anti sickness tablets did help that . It is an emotional rollercoaster but just talk to anyone that will listen .

    Wishing you well tomorrow

    Vanessa x

    #133235

    ness
    Participant

    >Hello Dawn
    My Name is Vanessa my husband started treatment in November at the age of 44 and is just completing the VTD courses and waiting for stem cell treatment .  We felt exactly the same petrified but the health care team walk you through each step and are very supportive. If you have any particular questions I could try and answer from our experience .

    • This reply was modified 7 years, 6 months ago by  ness.
Viewing 5 posts - 1 through 5 (of 5 total)