I am still early days and have just finished my second cycle. My itchiness has reduced with antihistamines and regular moisturising my dry skin – E 45 was v good and I probably dont need it any more and just use something cheaper.
I do get irritable, with brain fog and find it harder to make decisions. Fatigue does come and go – sometimes I will literally crash out, either in the morning or afternoon – somethings for 10 mins or 90. My legs and arms can feel weak. That said all of this does come and go. And when I am having my 7 days off at the end of the cycle and I better, stronger and less fatigued.
No real pattern, yet, and each day is not predictable. Some days are fine and I do wonder what contribution my mental state makes to my physical (mentally up and down). It is hard, but I find gentle exercise helpful mentally and physically.
When things are bad it is easy for them to get on top of you.
All I can say is to be kind to yourself, make sure everyone knows you are not back to normal and recognise that even these maintenance drugs have a real, not imagined impact. If you are feeling bad then try to accept it, rest and push through it and then make the most of those days when you feel better and stronger. Sorry not to be more helpful. If you can find a way to adapt to the new normal then I would absolutely agree that staying on the treatment is best. Nick
