Hi Jenny sorry missed your post of  28 04 my last review 9 05 pp 4.6 all bloods ok been stable like this last couple of years. Like You’re dad I worked in heavy industry diagnosed age 54 , on my consultants reccomendation I stayed off work a total of 18 months . I was lucky I still had reasonable mobility and had very few issues throughout my…[Read more]

Hi peony

Sorry to hear of your suffering. Like you I have no faith in my gp it took 6months of continual blood tests before referring me to hospital. I have my bloods done every 4 weeks and have a review with my nurse specialist 10 days later. My consultant has recently moved to another hospital but this routine won’t change. Can you not contact…[Read more]

Thanks for the link. After reading his story seems he’s been through the mill. His attitude to the disease is like mine, no way was I going to give in to some alien invaders in my body. I have always had a positive attitude and trusted implicitly in my consultant and my team of nurses. This is an awful disease and no two people are affected in the…[Read more]

<p style=”text-align: left;”>Hi Peter</p>
<p style=”text-align: left;”>I know there are many with mm who have survived much longer than I have. I consider myself very lucky that I have had very few issues compared to others who are posting on here.</p>
<p style=”text-align: left;”>My post was to give those newly diagnosed with mm hope for the…[Read more]