Pete, good luck for your appointment, 4 years is great! I can only hope that Sam will get 4 years. Sorry to read that you have relapsed though but good on you for remaining positive, I think that it is important to try and be positive.

Much love all,

Nicki x

How is everyone doing?

Sam had his first appointment with the consultant yesterday after starting the Velcade, he is at the end of cycle 2 of Velcade but we went to get the results of his blood test at the end of cycle 1 and his kappa light chain ratio has gone down from 89 to 14 after just one cycle of Velcade!

He was just to…[Read more]

Hope you had a good evening at your "do".

Nicki xx

Was nice to see you both the other day.

Nicki xx

Sam is currently cleaning the oven, he is bouncing off the walls on the Dex but isn't feeling too bad on the Velcade on the whole. On the plus side I have less housework to do as he is doing it at silly times in the morning like 7am when he can't sleep! He cleaned my…[Read more]

Eve I am glad that Slim has had a good response to Velcade, I hope that Sam does too.

Liz & Kev, great news about Kev's count!

I worry as I read somewhere that the first period of remission after the SCT is usually the longest, I hope that this proves not to be the case.

I hope that…[Read more]

Thanks so much for your kind words. So sorry Ozzy, Wendy and Trish to hear about the relapses, it's gutting isn't it, at the time no one told us how long Sam might have before he relapsed but I just thought he might have had longer, given his age (he is 38 now).

Trish I am glad that your mental health is ok now and that you had the…[Read more]

Sorry that I have not been on here for a long time, once Sam had recovered from his SCT we tried to forget about Myeloma for a little while and enjoy life. That wasn't to last as I had a nervous breakdown last July and am still very upside down with my mental health.

Sam's check up's had been reduced to every 10 weeks but just before…[Read more]

My husband Sam has Myeloma and was diagnosed 2 years ago aged 35.

Hi dad sadly passed away from Myeloma, either 10 or 11 years ago, I can't remember exactly how long ago as we weren't together at the time.

He was 58 when he died, I haven't asked a lot of questions about his dad to his mum and Sam was in the RAF and away a lot…[Read more]

My name is Nicki, I am 29 and my husband Sam is now 37.

Sam was diagnosed with Myeloma 2 years ago on the 17th of May 2010 at the grand old age of 35. We had been married for 10 weeks.

Although I am not the one suffering from this terrible disease, I can completely sympathise with how you must be feeling right now, cancer…[Read more]

Thankfully Sam isn't on velcade but it is important for everyone else to know just in case so thanks.

Nicki xx

Thanks for all of your lovely replies, so nice to read about the success stories (so to speak). Sam still gets very anxious in the lead up to his check ups, but I have to remind him to thunk about it logically, if there was a problem they surely would have had him back before his next scheduled appointment.

With regards to the…[Read more]

Long time no speak, sorry I haven't posted on here in such a long time, you guys were all so supportive when Sam was sick, I had planned to visit the site regularly in a hope that I could offer some reassurance to others at the time of need, but I haven't and I apologise for that, wrongly, Sam and mine's attitiude towards his illness…[Read more]

Nicki x

Sorry for the late message I do not visit the site very often at the moment.

So so sorry to read the news about Gordon.

My thoughts are with you and your family.

Nicki xxx

I really wanted to watch this, but couldn't bring myself to as programmes like that upset me much more since Sam's diagnosis, he sounds like an inspirational young man though.

xx

Thanks for your kind reply, and I am glad to hear that you found my post uplifting.

I didn't actually speak to you on the day but I did see you at the Myeloma UK Infoday (I recognised you from your pic on here and also your name badge), I hope you found it as interesting as I did xx

Nicki xx

Thanks so much for all of the good wishes.

It was so lovely to see yourself and Janet and it was really nice for Sam to meet you both as I have told him all about you. David I am so glad to hear that you too are feeling mostly well after your transplant, long may it continue.

Liz, glad to hear that my post has given you a boost,…[Read more]

Again, I haven't been on here for a while as I have been so busy with work and the new house but it doesn't mean that I don't frequently think about fellow members of this site.

How is everyone doing?

So sorry to read about the recent losses, I am thinking about their families.

All is well at this end, life has returned to…[Read more]

We leave for Edinburgh airport at about 1am, I am used to going to bed about 10pm most nights (boy do I love my bed!) so feeling tired already!

Sam on the other hand is downstairs fit as a fiddle watching Match Of The Day!

Very excited for our little trip as it is the first one that sam has been…[Read more]

Thanks for all of your kind words, it really does mean a lot.

Although I haven't posted on here much in the past I follow everyones journeys regularly and this site was truly a god send in the early dark days.

Its Only Me I wish you and your mum and family all the best and please keep us updated on how she is doing.

Eve I also…[Read more]

Sam is now 16 weeks post transplant and is doing amazingly well, he is no longer on any cancer medication, is happy and feeling well and is due to return to work part time on the 15th of March (thank god! he he!).

I have often nipped on the site briefly to see how everyone is doing but have not posted for a…[Read more]

So pleased to hear that your results so far are very good, and disappointed for you that you are only on cloud 8 amd cloud 9 🙂

Sam will be 16 weeks post transplant on wednesday and time has flown, his Myeloma wasnt the paraprotein type (if you know what I mean!) but he was told by his consultant last time that he was in a virtual…[Read more]

Thinking of you xx

Nicki xx

Have a good one!

Nicki xx

Words fail me I am afraid, I just wanted to say how sorry I am that you are going through this, if it is any consolation I think you are so so strong and brave, an inspiration, and you certainly won't be upsetting anyone with your post, we all just feel so very upset for you, Micheal and your family.

Micheal will be so proud…[Read more]

Wanted to reply to this post as saw as I read it as it struck a chord with me but have only just gotten round to it!

When Sam was first diagnosed we were treading on eggshells and it just wasn't normal for us and it really didn't feel right, in fact I think it made things worse. Until his mum, who nursed her husband through Myeloma…[Read more]

So glad that you are home and doing well, aside from catching my cold and having to stay in with a temperature Sam is nearly 6 weeks post transplant now and doing well.

Take care xx

Hope you all still a happy 10 on the happiness scale 🙂

Sorry I haven't posted to wish you luck before now, been a busy few days with Sam coming home so haven't been on.

Best of luck and hopefully before you know it you will be recovering at home as Sam now is (thank god!).

Will be following your daily blog with…[Read more]

Yes Sarah I think our husbands are roughly at the same stage, how is yours doing?

Pleased to report that Sam came home on Wednesday, 16 days after being admitted, and is doing well, he is still pretty exhausted but apart from that he is making a good recovery.

The day before discharge his White Blood Cell count was above 2.5 and…[Read more]

How's things?

My husband Sam was discharged from Fletcher Ward on wednesday after his SCT. He is doing well.

The staff are very nice on the ward and looked after Sam well.

Take care and keep us updated.

Nicki x

Hope everyone is well? Thanks for the further encouraging posts.

Well, it would be nice to say I am no longer irate and cross and feeling much happier, but I'm not, if anything I feel worse, so sorry to be so negative but I feel so mad I could literally smash something, it is the most awful feeling, but I can't snap out of it.

Sam…[Read more]

It is the affectionate name my family used as a child and some friends still use.

Never heard of that name for pants though! If it reminds people of knickers maybe I need a new nickname! Lol.

NickiNoo xxx

Thanks so much for all of your supportive words and advice, it is very much appreciated at such a low time in our lives.

Dai, it is true, you have such an amazing way with words, so thank you.

Sam is feeling a little better day by day, sleeping for probably 20 out of 24 hours, but his sense of humour is starting to return so I am…[Read more]

Thanks for all of your supportive replies.

What a few days it has been, Sam felt steadily worse over the last few days as predicted but the main problem has been the pain in the right arm, shoulder and neck, they have done an ultrasound for clots which was fine and also an xray which was also fine so now, even though he is…[Read more]

Finally joined the new site! Its really nice to put faces to names isn't it?

Sam has been in the City Hospital since monday now, had the chemo on tuesday and stem cells back yesterday.

He is feeling utterly exhausted and a little sick but that is about it for now. Is he likely to feel much worse before he feels better…[Read more]