nickyr replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years, 5 months ago
When I was diagnosed with MGUS (a sort of pre-curser to myeloma) a few years ago I decided not to tell many people about it (only a few family members and my closest friend). After all I wasn’t ill and apart from the worry of 6 monthly blood tests there were no symptoms or problems.
However when I was diagnosed with myeloma my mindset was…[Read more]
nickyr replied to the topic one week (and a bit) in in the forum Treatment 9 years, 5 months ago
Hi Jeffery.
Sorry for the considerable delay in replying. I don’t post or visit here as often as I should! Hope everything is good with you?
Yes I lost about 2.5 inches in height and as it stands 4 stone in weight (resulting in a new wardrobe!).
The pain in my back is still severe and my mobility is restricted (can’t really walk m…[Read more]
nickyr replied to the topic SCT in the forum Treatment 9 years, 5 months ago
8 months post SCT here.
My SCT was not a happy experience. I was in hospital for 4 weeks (3 for the transplant and a further 1 with an infection). I felt really ill for the duration and for some considerable time after. Boredom was not really a factor for me as I was so ill I couldn’t really contemplate doing anything other than lying do…[Read more]
nickyr replied to the topic one week (and a bit) in in the forum Treatment 9 years, 11 months ago
Sorry I’ve not posted here for a while but here’s an update of my situation.
Last December it was discovered that my spine had deteriorated to the point that urgent surgery was required to prevent paralysis. I had 4 vertebrae fused and plated just before Christmas and spent around a month in hospital.
After 3 months of chemo treatment I s…[Read more]
nickyr replied to the topic one week (and a bit) in in the forum Treatment 10 years, 8 months ago
HI Jeffery
MST stands f0r Morphene Sulphate Tablets. I can confirm that MST caused me hallucinations.
Nick
nickyr started the topic one week (and a bit) in in the forum Treatment 10 years, 9 months ago
I started my chemo last Tuesday (18 November). There was a slight delay as I had to be readmitted to hospital in severe pain on 16 November. I’m still here and will be for a few more days yet while they get my pain management sorted and get me mobile (I’ve been laid up in bed).
Everything started really well until i got to last Sunday night w…[Read more]
nickyr replied to the topic hello in the forum Newcomers 10 years, 9 months ago
H
I had my consultation last Thursday and was due to start chemo yesterday.
But on Sunday I had searing back pain and had to be re admitted to hospital. They did another X-ray and i actually started chemo today. It’s quite intensive over the next 12 weeks. I have to have another scan to see what’s causing so much pain and have to stay here un…[Read more]
nickyr replied to the topic hello in the forum Newcomers 10 years, 9 months ago
thnk you everyone again
I’m in the middle of a week of radiotherapy which has gone well – this morning the pain in my back is much, much better
I meet my Dr and trial nurse next Thursday to discuss my chemo regime. Can’t say I’m looking forward to chemo – especially over Christmas.
nickyr replied to the topic hello in the forum Newcomers 10 years, 10 months ago
thank you everyone
nickyr replied to the topic hello in the forum Newcomers 10 years, 10 months ago
thank you both
Susie – my fracture and plasma cytoma is in L3, and I’m being treated at Singleton Hosptal in Swansea.
nickyr started the topic hello in the forum Newcomers 10 years, 10 months ago
Hi
My name is Nick, I’m 50 and have just been diagnosed with myeloma.
I was diagnosed with MGUS 3 years ago and went to see my GP after I’d developed a nagging bad back about 3 months ago. She ordered an x-ray which showed possible myeloma so I went into hospital for a diagnosis and some pain relief!
I start a course of radio therapy next…[Read more]