When I was diagnosed with MGUS (a sort of pre-curser to myeloma) a few years ago I decided not to tell many people about it (only a few family members and my closest friend).  After all I wasn’t ill and apart from the worry of 6 monthly blood tests there were no symptoms or problems.

However when I was diagnosed with myeloma my mindset was…[Read more]

Hi Jeffery.

Sorry for the considerable delay in replying.  I don’t post or visit here as often as I should!  Hope everything is good with you?

Yes I lost about 2.5 inches in height and as it stands 4 stone in weight (resulting in a new wardrobe!).

The pain in my back is still severe and my mobility is restricted (can’t really walk m…[Read more]

8 months post SCT here.

My SCT was not a happy experience.  I was in hospital for 4 weeks (3 for the transplant and a further 1 with an infection).  I felt really ill for the duration and for some considerable time after.  Boredom was not really a factor for me as I was so ill I couldn’t really contemplate doing anything other than lying do…[Read more]

Sorry I’ve not posted here for a while but here’s an update of my situation.

Last December it was discovered that my spine had deteriorated to the point that urgent surgery was required to prevent paralysis.  I had 4 vertebrae fused and plated just before Christmas and spent around a month in hospital.

After 3 months of chemo treatment I s…[Read more]

HI Jeffery

MST stands f0r Morphene Sulphate Tablets.  I can confirm that MST caused me hallucinations.

Nick

H

I had my consultation last Thursday and was due to start chemo yesterday.

But on Sunday I had searing back pain and had to be re admitted to hospital.  They did another X-ray and i actually started chemo today.  It’s quite intensive over the next 12 weeks.  I have to have another scan to see what’s causing so much pain and have to stay here un…[Read more]

thnk you everyone again

I’m in the middle of a week of radiotherapy which has gone well – this morning the pain in my back is much, much better

I meet my Dr and trial nurse next Thursday to discuss my chemo regime.  Can’t say I’m looking forward to chemo – especially over Christmas.

thank you everyone

thank you both

Susie – my fracture and plasma cytoma is in L3, and I’m being treated at Singleton Hosptal in Swansea.