Myeloma Forum | nickyr | Activity https://forum.myeloma.org.uk/members/nickyr/activity/ Activity feed for nickyr. Wed, 08 Apr 2026 00:28:02 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 1ba3866ea69b71c83c3984de707adada nickyr replied to the topic Confused, worried, can anyone help in the forum Newcomers http://www.myeloma.org.uk/forums/topic/confused-worried-can-anyone-help/#post-127014 Sun, 28 Feb 2016 08:28:21 +0000 When I was diagnosed with MGUS (a sort of pre-curser to myeloma) a few years ago I decided not to tell many people about it (only a few family members and my closest friend).  After all I wasn’t ill and apart from the worry of 6 monthly blood tests there were no symptoms or problems.

However when I was diagnosed with myeloma my mindset was…[Read more]

]]> 2b080d0b7693aade8a34bc30303382c2 nickyr replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-127013 Sun, 28 Feb 2016 08:07:55 +0000 Hi Jeffery.

 

Sorry for the considerable delay in replying.  I don’t post or visit here as often as I should!  Hope everything is good with you?

 

Yes I lost about 2.5 inches in height and as it stands 4 stone in weight (resulting in a new wardrobe!).

 

The pain in my back is still severe and my mobility is restricted (can’t really walk m…[Read more]

]]> cf4d19a89efd994d43c43921245dd618 nickyr replied to the topic SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-6/#post-127012 Sun, 28 Feb 2016 07:59:33 +0000 8 months post SCT here.

 

My SCT was not a happy experience.  I was in hospital for 4 weeks (3 for the transplant and a further 1 with an infection).  I felt really ill for the duration and for some considerable time after.  Boredom was not really a factor for me as I was so ill I couldn’t really contemplate doing anything other than lying do…[Read more]

]]> a24cce7562f4315d931816e72c0dc8fc nickyr replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-124291 Mon, 21 Sep 2015 12:20:40 +0100 Sorry I’ve not posted here for a while but here’s an update of my situation.

Last December it was discovered that my spine had deteriorated to the point that urgent surgery was required to prevent paralysis.  I had 4 vertebrae fused and plated just before Christmas and spent around a month in hospital.

After 3 months of chemo treatment I s…[Read more]

]]> 29bfecbc1207bed3f365d494a915775f nickyr replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-119825 Thu, 04 Dec 2014 12:48:05 +0000 HI Jeffery

MST stands f0r Morphene Sulphate Tablets.  I can confirm that MST caused me hallucinations.

Nick

]]> f5139335fcbc12e22a35c3a3cf1b238b nickyr started the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/ Fri, 28 Nov 2014 21:18:32 +0000 I started my chemo last Tuesday (18 November).  There was a slight delay as I had to be readmitted to hospital in severe pain on 16 November.  I’m still here and will be for a few more days yet while they get my pain management sorted and get me mobile (I’ve been laid up in bed).

Everything started really well until i got to last Sunday night w…[Read more]

]]> a754f2d96166e32d5e9690a91fdf36ff nickyr replied to the topic hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-5/#post-119554 Tue, 18 Nov 2014 20:56:59 +0000 H

I had my consultation last Thursday and was due to start chemo yesterday.

But on Sunday I had searing back pain and had to be re admitted to hospital.  They did another X-ray and i actually started chemo today.  It’s quite intensive over the next 12 weeks.  I have to have another scan to see what’s causing so much pain and have to stay here un…[Read more]

]]> ceafb3ab338dd7b5d776976b30d96e7f nickyr replied to the topic hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-5/#post-119321 Thu, 06 Nov 2014 13:57:21 +0000 thnk you everyone again

I’m in the middle of a week of radiotherapy which has gone well – this morning the pain in my back is much, much better

I meet my Dr and trial nurse next Thursday to discuss my chemo regime.  Can’t say I’m looking forward to chemo – especially over Christmas.

]]> bd918fcf2b02557efa2f7739992ea94f nickyr replied to the topic hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-5/#post-119107 Sun, 26 Oct 2014 22:18:42 +0000 thank you everyone

]]> cfd269168cfce578ef34c13dc1a0d389 nickyr replied to the topic hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-5/#post-119101 Sat, 25 Oct 2014 21:40:27 +0100 thank you both

Susie – my fracture and plasma cytoma is in L3, and I’m being treated at Singleton Hosptal in Swansea.

]]> 75f834cba12179c83d7c92abf799429c nickyr started the topic hello in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-5/ Fri, 24 Oct 2014 20:56:57 +0100 Hi

My name is Nick, I’m 50 and have just been diagnosed with myeloma.

I was diagnosed with MGUS 3 years ago and went to see my GP after I’d developed a nagging bad back about 3 months ago.  She ordered an x-ray which showed possible myeloma so I went into hospital for a diagnosis and some pain relief!

I start a course of radio therapy next…[Read more]

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