Hi tony

i remember the worst week of my life well too  it was March 31st 2014 I was 44 at the time and have 2 boys aged 15 & 12. Me and my husband did not tell the boys for 6 months as eldest had GCSEs and his prom. It was an horrendous time. All I can say is after the anitial shock things will get easier for you and it will not seem so scary. I…[Read more]

Hi matt

thanks for your kind message.  Things have all gone well but am suffering with sickness at the moment.

Feeling slightly better today. Hope all is well for you x

Nicky

Thanks charlie I’ll give it my best shot. All the best with your chemo x I’ll let you know how it goes.

nicky x

Hi charlie I’m sorry to hear of your recent diagnosis. My name is Nicky (also female) I’m 45 (last week) I had 6 rounds. Of chemo and am in hospital tomorrow for my high dose chemo and sct. I have 2 boys age 16 and 13.and a dog.  I found it really hard and frightening when first diagnosed but kids are very resilient and they seem to take it all…[Read more]

Hi Angela and graham

i am really happy to hear how your husbands transplant went and to hear such good news about the years remission.

hope you have a really good holiday you deserve it having coped with all this treatment the past year 🙂 it makes me feel more positive about my transplant and chemo which is on the 23rd of feb,they delayed mine…[Read more]

Hi alan

thats exactly what I’ve had. I had medium dose of chemo  then had to have injections for a week to make stem cells spill out into blood which were then harvested. I don’t know if you have hair but it’s that lot of chemo that made mine start falling out. I asked my niece who is a hairdresses to clip mine off on Monday as it was just…[Read more]

Hi Alan

like yourself I’m booked in to have my stem cell transplant on the 23rd of February. I am getting really nervous about it I’ve been told that I will be in hospital to have the intense chemo and then the next day I have my stem cells back. If the next day I am ok with no temperature I can go home . It is worrying as by the second week I…[Read more]

Hi there,my name is Nicky and I am 44. I was diagnosed in March 2014 with mm. I am on the myeloma X1 trial. I have had 7 months of cyclophosphamide,lanolidomide and dex which has brought my para protein level from 29.5 down to 4.2. I wasn’t on any meds over xmas so I made the most of that

Just like to say hi, this is my first post on here. I was diagnosed in March 2014 after months of going up to doctors and a & e . Eventually had an MRI which confirmed a fractured sternum but also found a tumour behind the fracture. A biopsy confirmed mm and para proteins of 29.5. I have had 7 rounds of cyclophosphamide with lanolidomide and…[Read more]