Myeloma Forum | nickyx1 | Activity https://forum.myeloma.org.uk/members/nickyx1/activity/ Activity feed for nickyx1. Fri, 03 Apr 2026 23:03:17 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5db54ce3f4e0c0e8025d5212c578c18d nickyx1 replied to the topic Is this really happening? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/is-this-really-happening/#post-121876 Tue, 21 Apr 2015 20:55:47 +0100 Hi tony

i remember the worst week of my life well too  it was March 31st 2014 I was 44 at the time and have 2 boys aged 15 & 12. Me and my husband did not tell the boys for 6 months as eldest had GCSEs and his prom. It was an horrendous time. All I can say is after the anitial shock things will get easier for you and it will not seem so scary. I…[Read more]

]]> cea1dfdffcd81979b2dab992c7bd470f nickyx1 changed their profile picture https://forum.myeloma.org.uk/activity/p/37985/ Thu, 05 Mar 2015 07:38:00 +0000 0 cdf33f1573170fb203ba8e703eed1fed nickyx1 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/7/#post-121050 Sun, 01 Mar 2015 13:58:43 +0000 Hi matt

thanks for your kind message.  Things have all gone well but am suffering with sickness at the moment.

Feeling slightly better today. Hope all is well for you x

Nicky

 

]]> 394294f404e243560497ae0e176a64b3 nickyx1 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/7/#post-120937 Mon, 23 Feb 2015 09:19:31 +0000 Thanks charlie I’ll give it my best shot. All the best with your chemo x I’ll let you know how it goes.

nicky x

]]> 0b6cc65956b28815bdec4b90edebb434 nickyx1 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/6/#post-120930 Sun, 22 Feb 2015 22:14:48 +0000 Hi charlie I’m sorry to hear of your recent diagnosis. My name is Nicky (also female) I’m 45 (last week) I had 6 rounds. Of chemo and am in hospital tomorrow for my high dose chemo and sct. I have 2 boys age 16 and 13.and a dog.  I found it really hard and frightening when first diagnosed but kids are very resilient and they seem to take it all…[Read more]

]]> 8b537296069d54271f768d76cac5aa02 nickyx1 replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120709 Mon, 09 Feb 2015 14:15:48 +0000 Hi Angela and graham

i am really happy to hear how your husbands transplant went and to hear such good news about the years remission.

hope you have a really good holiday you deserve it having coped with all this treatment the past year 🙂 it makes me feel more positive about my transplant and chemo which is on the 23rd of feb,they delayed mine…[Read more]

]]> 2275028d7b2c905a7d33b96aa6b56805 nickyx1 replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120671 Sat, 07 Feb 2015 19:58:54 +0000 Hi alan

thats exactly what I’ve had. I had medium dose of chemo  then had to have injections for a week to make stem cells spill out into blood which were then harvested. I don’t know if you have hair but it’s that lot of chemo that made mine start falling out. I asked my niece who is a hairdresses to clip mine off on Monday as it was just…[Read more]

]]> 10617582686dc8a34ed27ae89bc347f8 nickyx1 replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120613 Tue, 03 Feb 2015 18:53:19 +0000 Hi Alan

like yourself I’m booked in to have my stem cell transplant on the 23rd of February. I am getting really nervous about it I’ve been told that I will be in hospital to have the intense chemo and then the next day I have my stem cells back. If the next day I am ok with no temperature I can go home . It is worrying as by the second week I…[Read more]

]]> e292f56d7100f1dac67a0f15e8d4855f nickyx1 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/6/#post-120251 Sat, 10 Jan 2015 22:41:52 +0000 Hi there,my name is Nicky and I am 44. I was diagnosed in March 2014 with mm. I am on the myeloma X1 trial. I have had 7 months of cyclophosphamide,lanolidomide and dex which has brought my para protein level from 29.5 down to 4.2. I wasn’t on any meds over xmas so I made the most of that

]]> 71303c06d0b0c33f53d6f7bc54c943dd nickyx1 replied to the topic Finally saying hello. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/finally-saying-hello/#post-120250 Sat, 10 Jan 2015 22:20:25 +0000 Just like to say hi, this is my first post on here. I was diagnosed in March 2014 after months of going up to doctors and a & e . Eventually had an MRI which confirmed a fractured sternum but also found a tumour behind the fracture. A biopsy confirmed mm and para proteins of 29.5. I have had 7 rounds of cyclophosphamide with lanolidomide and…[Read more]

]]> 40601ea443bb8b39f9380c1c159c10e1 nickyx1 became a registered member https://forum.myeloma.org.uk/activity/p/37040/ Sat, 10 Jan 2015 21:58:51 +0000 0