ellen replied to the topic Our highly valued Professor Gareth Morgan in the forum General 10 years, 7 months ago
loislobban changed their profile picture 10 years, 7 months ago
loislobban replied to the topic Living with myeloma book: your hints and tips in the forum General 10 years, 7 months ago
Thank you all for your contributions they are very useful and just the type of thing we’re looking for.
If any one else would like to contribute to the book, please keep sending me your hints, tips and experiences. If you would prefer to email me directly please email me at lois.lobban@myeloma.org.uk
Many thanks
Lois
loislobban started the topic Living with myeloma book: your hints and tips in the forum General 10 years, 7 months ago
Myeloma UK is writing a book on the hints and tips of living with myeloma for patients and carers, by patients and carers and we need your help.
Your feedback had told us that practical information, advice and experiences from others is very powerful but hard to come by.
The book aims to gather useful hints and practical tips from a group of…[Read more]
ellen replied to the topic The guesswork that is myeloma treatment at present in the forum General 10 years, 10 months ago
Hello everyone. I thought I would step in as this discussion is becoming a bit heated. There is nothing wrong with lively productive discussion, but can I please remind you all to be mindful of each others feelings. Posters and viewers of these forums are likely to be patients, family members or loved ones, some of whom may be in a difficult…[Read more]
ellen changed their profile picture 10 years, 10 months ago
mel and Harmony are now friends 10 years, 10 months ago
mel and nicola are now friends 10 years, 10 months ago
mel and hannahbingham are now friends 10 years, 10 months ago
mel posted an update 10 years, 10 months ago
New to this, on my 5th block of treatment
hannahbingham and nicola are now friends 10 years, 11 months ago
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ellen replied to the topic Request for forum users to take part in a research study in the forum Off topic 10 years, 11 months ago
Thank you Helen
You make a very appropriate point. I contacted Brett and asked him the question and this was his reply. I hope this helps clarify things.
The department is the Faculty of Development and Society at Sheffield Hallam University. The research is part of a masters in Health Psychology, therefore its purpose is to gain an…[Read more]
ellen replied to the topic Here we go again in the forum Newcomers 11 years, 6 months ago
Good morning, I hope you don?t mind me responding to this topic, it is a question that is asked very commonly and I hope I can clarify some things.
Unlike some other cancers and diseases, like cystic fibrosis or some forms of breast cancer for instance, myeloma is not caused by a single inherited gene. However, people do inherit certain sets…[Read more]
ellen replied to the topic Jaundice in the forum Side-effects 11 years, 6 months ago
Dear San
I am sorry that you haven?t had any responses to your question as yet. This is probably because Jaundice is a fairly rare side-effect/complication and the other board users may not have any experience of it.
Jaundice (or yellowing of the skin and whites of the eyes) can happen for a number of reasons. Perhaps the most common cause…[Read more]
ellen started the topic Keith Hindmarch. in the forum End of Life and Grief 11 years, 6 months ago
It is with great sadness that I have to bring you the news of Keith passing in the early hours of this morning. I have just spoken to Sue and she wanted me to pass on her thanks to all of Keith?s online friends.
Sue has family and friends around her and is being supported in her grief.
On a personal note, I and many of the staff here at…[Read more]
ellen replied to the topic Auto;Allo;Mini Allo…..? in the forum Treatment 11 years, 7 months ago
Dear Domg6
Please drop me a line to askthenurse@myeloma.org.uk or call the Freephone Myeloma Infoline on 0800 980 3332 and I, or my colleagues, will do our best to answer your questions.
With best wishes
Ellen
ellen replied to the topic Keith Hindmarch in the forum General 11 years, 7 months ago
Good morning everyone.
I have just spoken to Sue and she has asked me to pass on her and Keith?s appreciation for all your kind wishes at this difficult time.
Ellen
ellen replied to the topic mgus check up in the forum Related conditions 11 years, 7 months ago
I am sorry that, as yet, you haven?t had any responses to your query. I hope you don?t mind me replying. My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.
Nose bleeds can occur for several reasons in the general population. For some people, frequent nose bleeds can occur as a result of low platelet levels.…[Read more]
ellen replied to the topic MGUS pregnancy in the forum Related conditions 11 years, 7 months ago
Dear Kim
I am sorry that, as yet, you have had no responses to your query. I hope you don?t mind me replying. My name is Ellen Watters and I am one of the Myeloma Information Specialists at Myeloma UK.
The issue of MGUS and pregnancy is one that has come up before on the Myeloma Infoline, so I have previously asked a number of…[Read more]