Hi Andy

Thanks for the info it’s very helpful. Trying to understand the disease is hard for me but the way you word it is much easier to get my head round.

I think the dr is letting me go swimming as I’m feeling so depressed about it all and it will make me feel better. Mind you I haven’t had the energy to go yet. Dex days today and tomorrow so…[Read more]

The support on here is truly amazing. Such inspirational stories.

Thank you Jane for giving us hope. To be still fighting 18 years on is just brilliant. When I think of the time they’ve told me (4-5 yrs) I’m going remember your message and try to be positive. My husband was a bit unsure of me using the forum but when I read him that he’s changed…[Read more]

Morning friends

Robbo I’m sorry to hear what your going through. It’s a tough time and the not knowing is so scary. Good luck for your meeting.

For me Friday was a crap day. It started with a letter copied to me from my specialist to my doctor telling him my diagnosis and prognosis. It’s felt like I’d been told all over again.  My meeting with…[Read more]

Hi Dawn

its very scary but you’ve come to the right place. Any questions will be answered I should think. Try not to google. That’s the mistake I made.

I was diagnosed multiple myeloma 3 1/2 weeks ago and am still in shock. I only plucked up the courage to come on here yesterday. So well done you. Hopefully you’ll feel like me and another hurdle…[Read more]

Thank you Mandy and Andy. It’s great talking to people with the same disease. It’s really helping me.  I’m going to make sure I drink more water. I’m drinking everything but water at the mo and the steroids are making me hungry all the time.

The last time I saw the specialist was when he confirmed it was myeloma so I think my mind is in…[Read more]

Morning Keith Andy Wendy and Martin,

thanks so much for the replies. The steroids have given me insomnia so up at 4 am.

I know that this site is definitely going to help me. Hearing inspirational stories and reading accurate info has gotta be my way forward. For the past 3 weeks I’ve felt like a dark cloud is following me everywhere and all…[Read more]

Thanks Julie x

Hi Julie

Many thanks for you reply.  Your the first person I’ve spoke to who has the same type of cancer.  It doesn’t seem a very common cancer and trying to get my head around it is a nightmare.  When I read all the paperwork they give you from the hospital and it tells you who falls into the category, it just doesn’t make sense.  I’m a 43 yea…[Read more]