Thanks for the info it’s very helpful. Trying to understand the disease is hard for me but the way you word it is much easier to get my head round.

I think the dr is letting me go swimming as I’m feeling so depressed about it all and it will make me feel better. Mind you I haven’t had the energy to go yet. Dex days today and tomorrow so…[Read more]

Thank you Jane for giving us hope. To be still fighting 18 years on is just brilliant. When I think of the time they’ve told me (4-5 yrs) I’m going remember your message and try to be positive. My husband was a bit unsure of me using the forum but when I read him that he’s changed…[Read more]

Robbo I’m sorry to hear what your going through. It’s a tough time and the not knowing is so scary. Good luck for your meeting.

For me Friday was a crap day. It started with a letter copied to me from my specialist to my doctor telling him my diagnosis and prognosis. It’s felt like I’d been told all over again.  My meeting with…[Read more]

its very scary but you’ve come to the right place. Any questions will be answered I should think. Try not to google. That’s the mistake I made.

I was diagnosed multiple myeloma 3 1/2 weeks ago and am still in shock. I only plucked up the courage to come on here yesterday. So well done you. Hopefully you’ll feel like me and another hurdle…[Read more]

The last time I saw the specialist was when he confirmed it was myeloma so I think my mind is in…[Read more]

thanks so much for the replies. The steroids have given me insomnia so up at 4 am.

I know that this site is definitely going to help me. Hearing inspirational stories and reading accurate info has gotta be my way forward. For the past 3 weeks I’ve felt like a dark cloud is following me everywhere and all…[Read more]

Many thanks for you reply.  Your the first person I’ve spoke to who has the same type of cancer.  It doesn’t seem a very common cancer and trying to get my head around it is a nightmare.  When I read all the paperwork they give you from the hospital and it tells you who falls into the category, it just doesn’t make sense.  I’m a 43 yea…[Read more]