nippy started the topic Can paraproteins increase while on treatment in the forum General 7 years, 9 months ago
My sis has just been told that her protiens have gone up to 7 from 3 while on treatment.. Can anyone tell me if this is thr norm? She’s just text me while on her way back so I’d thought I’d ask x
nippy started the topic Worried about sis health in the forum General 8 years, 7 months ago
Hi all. My sis was diagnosed in March this year. Lots of chemo done and now waiting for STC in sep. The thing is for the last three weeks she’s been poorly. Severe throat problem loss of hearing. Gp has given antibiotics but the consultant said there is no infection.. Her energy is zero. She can’t face food. We need her to be fit and ready fo…[Read more]
nippy replied to the topic New member in the forum Newcomers 8 years, 10 months ago
Sadly I can’t agree… It was missed. Test were not done. Sis can’t work. How is the morgage to be paid??? They won’t pay put until the docs tell her a date she will die… Shocking. The docs she has now are amazing. The nhs is insured they don’t actually pay out.. It would be nice to get some payment now sis can’t work
nippy replied to the topic New member in the forum Newcomers 8 years, 10 months ago
Omg mate. The same thi g happened to my sister. For six months she was told it was a bad back muscular they said. She said no its not I know my own body x they did some tests but never checked her proteins… She complained and I said sue them. They replied and said sorry but we did the tests that were needed.. Erm no u didn’t. Now she’s ge…[Read more]
nippy replied to the topic New member in the forum Newcomers 8 years, 11 months ago
Well dont Google anything . Join myloma sites. Speak to doc and leave it with that. Google gives u answers and can scare u. X stage one obviously is the best stage and has the best outcomes bud. You will be fitting fit in no time x
nippy replied to the topic New member in the forum Newcomers 8 years, 11 months ago
What’s have they said yo you. Give me a little info if you would?
nippy replied to the topic New member in the forum Newcomers 8 years, 11 months ago
Welcome.. I don’t fish but have three aquariums lol. Sorry to hear u have myloma. My sis was diagnosed six weeks ago. How r u?
nippy replied to the topic Sis back in hospital in the forum General 9 years ago
Thank you x. Well she came home. Two days later temp back up to 38.8 does anyone else have this problem x
nippy replied to the topic Sis back in hospital in the forum General 9 years ago
Thanks for the replies. Sis has been told there is a shadow on her lung. Needs a ct scan. Sadly this is from the xray five weeks ago. They missed it. 😞
nippy started the topic Sis back in hospital in the forum General 9 years ago
Well sis started her chemo. Slightly rash. She’s now back in hospital with a temperature of 39. Pumping her with antibiotics.. Doc says it’s a chest infection x. So angry and pissed off that this is happening ( sorry for the language) she is worrying now xx
nippy replied to the topic I need help on what to do for sis. in the forum Newcomers 9 years, 1 month ago
Thank you all so much… Been to see her today and looking better. She starts chemo ( tablet form) on Monday. I read that siblings should get tested x I thank you for your reply and I do wish you all well. Having a chronic disease myself I know it hard not to Google things. Sadly I did x
nippy started the topic I need help on what to do for sis. in the forum Newcomers 9 years, 1 month ago
Hi. My sister has just been diagnosed with Mm.. She’s been told today she will get four months of chemo then stem cell treatment. I don’t want to Google this so thought best to ask on here. I want to give her poz info. She’s only 49 and docs said she’s the youngest patient he has had. Just looking for any Info off anyone who has it or has had…[Read more]
nippy became a registered member 9 years, 1 month ago