https://forum.myeloma.org.uk/members/nippy/activity/ Activity feed for nippy. Sun, 12 Apr 2026 03:46:48 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5895331163626f3fb3fd214e311b7e29 https://www.myeloma.org.uk/forums/topic/can-paraproteins-increase-while-on-treatment/ Fri, 23 Jun 2017 16:20:14 +0100 My sis has just been told that her protiens have gone up to 7 from 3 while on treatment..  Can anyone tell me if this is thr norm?  She’s just text me while on her way back so I’d thought I’d ask x

]]> ca38c03dd3aa00a450cda08c41f34747 https://www.myeloma.org.uk/forums/topic/worried-about-sis-health/ Mon, 29 Aug 2016 11:15:40 +0100 Hi all. My sis was diagnosed in March this year.  Lots of chemo done and now waiting for STC in sep. The thing is for the last three weeks she’s been poorly.  Severe throat problem loss of hearing. Gp has given antibiotics but the consultant said there is no infection..  Her energy is zero. She can’t face food. We need her to be fit and ready fo…[Read more]

]]> 75f69ed8cb5320d8112215a377395612 https://www.myeloma.org.uk/forums/topic/new-member-3/#post-127929 Sun, 15 May 2016 18:33:34 +0100 Sadly I can’t agree… It was missed.  Test were not done.  Sis can’t work.  How is the morgage to be paid???  They won’t pay put until the docs tell her a date she will die…  Shocking. The docs she has now are amazing. The nhs is insured they don’t actually pay out.. It would be nice to get some payment now sis can’t work

]]> efed8432a1456f1996e4b3d42683b2f3 https://www.myeloma.org.uk/forums/topic/new-member-3/#post-127893 Wed, 11 May 2016 16:35:23 +0100 Omg mate.  The same thi g happened to my sister. For six months she was told it was a bad back muscular  they said. She said no its not I know my own body x they did some tests but never checked her proteins… She complained and I said sue them. They replied and said sorry but we did the tests that were needed..  Erm no u didn’t. Now she’s ge…[Read more]

]]> 5a99289227a571526ebdaf24e0b1f8c0 http://www.myeloma.org.uk/forums/topic/new-member-3/#post-127740 Sat, 23 Apr 2016 06:14:54 +0100 Well dont Google anything .  Join myloma sites. Speak to doc and leave it with that.  Google gives u answers and can scare u.  X stage one obviously is the best stage and has the best outcomes bud.  You will be fitting fit in no time x

]]> 8393a3d8c8a367bc44b8068205d01f02 http://www.myeloma.org.uk/forums/topic/new-member-3/#post-127738 Fri, 22 Apr 2016 20:25:12 +0100 What’s have they said yo you.  Give me a little info if you would?

]]> 1bfe757783131abc8b20fcfecef4c54d http://www.myeloma.org.uk/forums/topic/new-member-3/#post-127736 Fri, 22 Apr 2016 19:49:12 +0100 Welcome.. I don’t fish but have three aquariums lol. Sorry to hear u have myloma.  My sis was diagnosed six weeks ago.  How r u?

]]> 4e2114b56188a544d994f70747dac746 http://www.myeloma.org.uk/forums/topic/sis-back-in-hospital/#post-127413 Sat, 26 Mar 2016 10:09:31 +0000 Thank you x. Well she came home. Two days later temp back up to 38.8  does anyone else have this problem x

]]> 8e9e0b69d7efca073713983ba64ab442 http://www.myeloma.org.uk/forums/topic/sis-back-in-hospital/#post-127372 Mon, 21 Mar 2016 19:45:54 +0000 Thanks for the replies.  Sis has been told there is a shadow on her lung. Needs a ct scan. Sadly this is from the xray five weeks ago. They missed it. 😞

]]> 957b1ecff5c6fb53cb0608648db69418 http://www.myeloma.org.uk/forums/topic/sis-back-in-hospital/ Sun, 20 Mar 2016 17:09:33 +0000 Well sis started her chemo. Slightly rash. She’s now back in hospital with a temperature of 39.  Pumping her with antibiotics..  Doc says it’s a chest infection x.  So angry and pissed off that this is happening ( sorry for the language)  she is worrying now xx

]]> 6f1303a783dcec0b07efaed521337896 http://www.myeloma.org.uk/forums/topic/i-need-help-on-what-to-do-for-sis/#post-127103 Fri, 04 Mar 2016 19:56:28 +0000 Thank you all so much… Been to see her today and looking better. She starts chemo ( tablet form) on Monday. I read that siblings should get tested x I thank you for your reply and I do wish you all well. Having a chronic disease myself I know it hard not to Google things.  Sadly I did x

]]> 9af8fdfce75c56d7a04f5656861bf1b8 http://www.myeloma.org.uk/forums/topic/i-need-help-on-what-to-do-for-sis/ Thu, 03 Mar 2016 20:14:13 +0000 Hi. My sister has just been diagnosed with Mm..  She’s been told today she will get four months of chemo then stem cell treatment.   I don’t want to Google this so thought best to ask on here.  I want to give her poz info. She’s only 49 and docs said she’s the youngest patient he has had.  Just looking for any Info off anyone who has it or has had…[Read more]

]]> 716f8f13ee02e14e89f202d7b4bcc431 https://forum.myeloma.org.uk/activity/p/43749/ Wed, 02 Mar 2016 04:49:55 +0000 0