Myeloma Forum | Noel Morgan | Activity

Noel Morgan started the topic Six months post Allogeneic transplant in the forum Treatment

Fri, 14 Aug 2015 21:41:36 +0100

Hi all, Well where has the time gone; I had my allo graft transplant last February and so far recovery has gone well, with only a couple of mild infections which were dealt with quickly.

I’ve just been weaned off of the immuno-suppressants and in the words of my enigmatic consultant, “the action starts now…” So it’s wait and see what level of…[Read more]

Noel Morgan replied to the topic Allo graft (Allogeneic) stem cell transplant in the forum Treatment

Sun, 01 Feb 2015 00:25:34 +0000

Hi Ann,

I completely agree with you on there not being an option when dealing with high risk myeloma if an allo graft is recommended. The problem for us is that there seems to be different trains of thought amongst consultants on whether an allo graft is a beneficial form of treatment when compared to new targeted treatments; so if the experts…[Read more]

Noel Morgan replied to the topic Finally saying hello. in the forum Newcomers

Sat, 31 Jan 2015 03:04:43 +0000

Hi Nicola, sorry for late reply, I haven’t been on here much since xmas. It seems the way we both presented our myeloma is very similar and yet the treatment leading up to SCT was different; apart from the Dex – everyone seems to get Dex. You may be still in hospital as I write this so I hope it has all gone well for you. Just remember that…[Read more]

Noel Morgan started the topic Allo graft (Allogeneic) stem cell transplant in the forum Treatment

Sat, 31 Jan 2015 02:45:11 +0000

Yesterday I started conditioning treatment for an Allo graft transplant. I’ve heard many times that it is not a treatment used very often for myeloma with the main reason being risk of mortality vs treatment benefit.

In my case it was recommended as an option because of the ‘high risk’ nature of my myeloma as identified by the FISH test. High…[Read more]

noel changed their profile picture

Mon, 08 Dec 2014 11:58:17 +0000

noel replied to the topic Advice welcome in the forum Newcomers

Mon, 08 Dec 2014 11:42:51 +0000

Hi Cygnet,

My bone pain did eventually become persistent but it took it about seven months to get to that point. In the beginning the pain would last a few days, then it was weeks and it would be quite severe. My bone pain was mainly in the sternum and the ribs and before treatment started I was also beginning to feel back pain. I worked in a…[Read more]

noel replied to the topic Advice welcome in the forum Newcomers

Mon, 08 Dec 2014 02:16:53 +0000

Hi, I was diagnosed about 18 months ago and so have been where you are now also. A marrow biopsy will happen pretty quick; I had my first one done within a week of my first haematologist appointment. I’ve now had five biopsy’s and have had local every time.

Once the procedure starts it only takes about five minutes and in my experience the pain…[Read more]

noel replied to the topic Finally saying hello. in the forum Newcomers

Mon, 08 Dec 2014 01:47:43 +0000

Thanks everyone,

Being and remaining positive is very important to your well being. I am feeling so much better now than I did when I was first diagnosed and it’s all about keeping it that way. There are exciting new drugs on the way and survival times are improving all the time. Lots to look forward to.

noel started the topic Finally saying hello. in the forum Newcomers

Sun, 30 Nov 2014 02:31:19 +0000

My first post here and so just wanted to say hi to everyone. I was diagnosed in July of last year 2013 with stage 2 MM. I was 44 years old.

My paraprotein was initially 31 and rose to 41 just before treatment began and I had a lot of bone pain especially in the sternum and ribs. I went through 8 cycles of two different types of treatment before I…[Read more]

noel became a registered member

Sun, 30 Nov 2014 02:04:05 +0000