[nordicParticipant]

My treatment Belantamab Mafodotin had to be paused last month as after 2 treatments I developed some eye problems, bad case of dry eyes for about 5 days before it started to get better. Still have some eye issues still but very much better now. Had a very comprehensive eye examination at hospital eye clinic 2 weeks ago, had some scratches on the eye and what they term micro-cysts in the eye blood vessels. Was only using dry eye drops quite often so they proscribed me Xailin night gel and must admit it has made a big difference in my eyesight recovery. my eyes have recovered well these past 2 weeks and now have another eye test in 2 weeks. Hopefully they will be good enough to restart Belantamab Mafodotin, results so far have been amazing in reducing levels from 10.7 to 5.4. can put up with with some eye problems if results continue to be like this, might finally have a much longer remission this time.

• This reply was modified 5 hours, 49 minutes ago by  nordic.

[nordicParticipant]

Have had 2 months of this treatment now of Belantamab Mafodotin along with velcade and dexamethasone over a weekly course of 6 months with no problems of note to mention, I get a bit fatigued at times but this can happen with any treatment. Have had 2 eye tests done so far and have no eye issues so far. My next dose of Belantamab is 3r Feb. Saw one of the doctors overseeing my treatment this week and was very surprised to find out that even after just 2 rounds my levels have dropped a fair amount. With 4 rounds to go results so far have been very encouraging for me. Hope those who are on this treatment have the same experience and results that I am currently have.

[nordicParticipant]

I just started on 1st Belantamab Mafodotin along with velcade and dexamethasone over a weekly course of 6 months(if no problems) after Radar trial drugs stopped working for me. Hopefully this new treatment will provide a longer remission time, been told this can be a least 3yrs So far have had no signs of any side effects of this new treatment. I hardly never had much much of any sides effects apart from some fatigue from all treatments chemo and then Stem Cell Transplant since April 23.

[nordicParticipant]

When I started this trail I only completed 1st week as I caught flu which put me in hospital for 8 days and them home rest for another week. Restarted the trail from week 2 and I needed to have some units of blood during week 2-3 of trial I am currently on cycle 2 week 2 of the Radar trial and when you hear the words chemo you think of the bad side effects that chemo can entail but I am very surprised that I have had no side effects from the treatment (so far). I do not know what my current levels are but I do feel a lot less tired and have a bit more energy compared to pre trial. Hopefully my myeloma can be pegged back to low levels and stay there for a long while.
Best wishes to all

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