[nualaParticipant]

Hi this is Nuala, I had my SCT just over two weeks ago, I had a 15 night stay, overall I think I can say it wasn’t as bad as it might have been! I wouldn’t do it for fun though! I had 8 bags of my stem cells back, I had to have lots of IV fluids, a blip during the transplant when my heart rate rocketed but overall it was uneventful. Like others have said I felt well then bam – tiredness kicked in like I couldn’t believe, I just wanted to lay still & close my eyes! I’d sucked on ice chips as I was told to, I had mouth dryness & a painful throat for about 3 days but I was soft brushing & using mouthwash, no ulcers or anything like that. Eating became a bit of a nightmare, having to order for the next days meals I found really difficult because my taste buds were shot, I had very little appetite. I have lost a lot of weight but now I’m home I can eat just what I fancy! Diarrhoea has been a problem so I take Imodium now & then, no sickness at all which was one of my fears but that was very well managed with anti emetics. My hair fell out after about 5 days, I’d had it cut short then my husband shaved it when I got home. Mostly I would say I’m just so glad & relieved I’ve done it – just want to get over this fatigue. Good luck to anyone waiting for theirs.

[nualaParticipant]

Hi, I’m 62, diagnosed with myeloma October 2022, I am due to go into hospital for my autologous stem cell transplant, just had a quick look on here & pleased to find posts saying it wasn’t as bad an experience as expected so thank you all, especially Lakedis I think the name was, I’m not very good at navigating these forums as you can probably tell!
Nuala

[nualaParticipant]

Hi, thank you for your kind message, hope you’re feeling well, have a good weekend!
Nuala

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