Hi how are you and hows your Dad doing???

Just a little note to see how things are going at your end??

mum is doing ok finding some days harder than others..

Been thinking about how you got in in the end?
Regards

only Me!!
x

Hi what a lovely re assuring tale and I admire you, for what you have both been through and now having the strength to look back and re assure everyone else it can be such lovely outcome…
I am going to read this over and over again, when my mum finally goes in for the SCT… it will give me such boost…

Well done to both of you for getting…[Read more]

Hi Clara,

If I can pass on what I learnt, whether it will help you at all, I dont know, and I suppose each case with MM is different so am not sure if your Dad will be the same..

But My mum is 67 and like your Dad, is quite a young 67!! So when I went with Mum and Dad for the appt, I was expecting three boxes …consisting of the CTD!!..…[Read more]

Hi,
Thats good news that you back on track too and feeling good again after little dip!!
You make sure you look after yourself and get lots of rest.. I am sure the time will come for you to be wonder woman again!!!!.. We all like to think we can keep going and are ok when deep down our bodies know differently!!

Take care and keep in…[Read more]

Hi.. thank you for your comments.. yes the booklet is beginning to make sense.. and the tick chart is making the medication easier to administer…
I am wanting my mum to make a diary… only 'few words' on each day so she can see how she responds to the tablets.. and can see if pattern emerges!! but its probably too early days yet…

I think…[Read more]

Hi all thank you for your kind wishes…

Well a little setback…Mum felt bit unwell after day one but we are back to normal and doing really well.. Mum is in hospital with low potassium levels, but is going to be coming out tomorrow and is feeling lot chirpier!!! All been rectified and after a few bags of saline, we back on course and things…[Read more]

Hi Hope that you are ok..

Have been thinking of you today as we seem to be both at the same point …. you with your dad and me with my mum !

Sending you best wishes to you and your family… Lots of love to your dad and hope the chest gets better very very soon..

We have just started the CDT today, athough boy is it minefield.. but am…[Read more]

Hi Clara … Can't answer any of your questions … But what can do is send you lots of love as you battle your way through things … I am new too so can identify with all the initial queries … Good luck tomoro my mum starts cdt tomoro too xx take care hope u get answers u need xx

Hi just wanted to send my best thoughts back to you too…
It is daunting and frightening, and this site is very re assuring as we can find things out if we choose too… I am hoping you are geting the info you need..

Regards
Angie
x

Hi David thank you ……It was piece of jigsaw that I couldnt find.. the trigger that would start things off for transplant!! Thank you……I will listen out for her levels of paraprotein, if that is the indicator…

I have read up about the transplant and seem to be aware of things that will happen from the harvest, it all seems so clever…[Read more]

Wow, what a lovely sight greeted me this morning all these lovely replies.. thank you and what a welcome I have received!!
All is calm and we are getting used to the idea of the Myeloma topic being quite strong one at the moment! I have spent this week reading up on the subject but am only going on trusted websites.. ie here!!

Mum is starting…[Read more]