So sorry to hear about the loss of Peter.Our thoughts are with you. Take care Ozzy and Gayle xx

Hiya Trish
I had my transplant in January 2011 and had my vacinations in January this year.I had all the ones the babies have one each month for 3 months plus pneumonia for 2 months,and meningitis x 3, and had the flu one Nov. I will have them repeated it Jan 2013. I've got the list somewhere I'll have to dig it out.
Regards Oz

Hiya all
I had my sct in Jan 2011 and my PP never got to Zero.They have been 4 since October 2010 after the 6 cycles of CDT. On my last appt in May the consultant said that it was a good remission but I always worry because its never got to zero so the mm is still there. I too dread every appt my next one Sept I think everyone feels the same. I…[Read more]

Hiya
When I was in hospital having my sct, on the 3rd week I had two bags of platelets but didn't have any more.I suppose the large amount of chemo they blast you with causes the new cells some initial problems.
Take care Ozzy

Dear Siobhan
We are absolutely gutted to hear this news.Bridget was a true fighter and will be missed enormously with all her wonderful advice.
Our thoughts are with you and the family.Take care.
Ozzy & Gayle

Hiya
I am now 15 months post transplant and my legs ached like toothache. They have improved now and my hair grew back darker and a mass of curls. Since having it cut now a few times it has gone back to its usual greyish colour and I have lost the curly perm look!I work 6 hours daily and like Tom get really tired and need to sleep.Try not to do…[Read more]

Dear Michelle
I'm just reading your post and I am so very sorry to hear about Phil's passing.I am Ozzy's wife Gayle and reading your post just brings home to me the true reality on how this cruel horrid illness strikes and destroys loving families in its path. Friday will be a hard day but as Gill says it is a celebration of Phil's life and…[Read more]

Hadn't heard about this link before but had read somewhere that people who worked with chemicals such as farmers MM was quite common. I worked in a plating factory and worked with many acids and other chemicals such as cadmium so I often wonder if this is how I ended up with this dreaded disease.

I was diagnosed in January 2010, had 6 months CDT and my pp level went from 42 down to 5. I had a stem cell transplant in January 2011 a year almost today. I was working until I had a blip in my treatment in the June 2010, spent 3 weeks in ITU and didn't return back to work June 2011 5 months after transplant. It was my goal to get back to work…[Read more]

I take sodium clodranate "Bonefos" 2 tablets twice daily as I am unable to have monthly transfusion due to my gums.
I do not have any problems with these and have been taking these for 18 months.
Good luck

I had stem cell transplant in Jan 11 and returned to work 1st June. I find I am very tired even though I am still on reduced hours. I think there has to be a happy medium and I am seriously considering going part-time if the work can accommodate me. I am 57 now and feel too young to retire and I like the banter at work and can forget about cancer…[Read more]

I'm 57 diagnosed jan10 when I was 56.No symptoms whatsover and problem found in an annual routine blood test in Nov 2009. My pp level was 22 at diagnosis and I started CTD treatment in May 2010 when the level reached 42. I had 6 courses of treatment and had a sct in Jan this year. My level is now 4.I have a son 25 & a daughter 20 who took the…[Read more]

Hiya Gill
Hope to hear good news next time. Good luck to Stephen for his second SCT.

Thanks for replying so hopefully in a few weeks time perhaps I'll be released for good behaviour and allowed back to the pub!

Hiya thanks for replying.
I know when I get the ok I can return to work on a phased return I never thought I would be looking forward to work!I can't wait for a holiday either I feel that I've been serving a prison sentance stuck in the house.
Regards Ozzy