Myeloma Forum | pauloram | Activity https://forum.myeloma.org.uk/members/ozzy/activity/ Activity feed for pauloram. Tue, 14 Apr 2026 20:56:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 906ed986ad195877881d05e150c7b62a pauloram replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117861 Sun, 31 Aug 2014 11:49:47 +0100 Dear Eve
So sorry hearing this news Slim put up a valiant fight. Our thoughts are with you and please take care of yourself.
Paul & Gayle xxxx

]]> d0541cea28a88149e81c9f9e58e1c4c7 pauloram replied to the topic Lenalidomide & Maintenance in the forum Related conditions http://www.myeloma.org.uk/forums/topic/lenalidomide-maintenance/#post-117859 Sun, 31 Aug 2014 11:23:35 +0100 Hi
Pauls been on maintenance Rev this is his second month, He is on 15 mg daily 21 days and 7 days off. He is taking it along with soluble aspirin for the blood clots. So far hes ok. Hes had 6 courses of CRD feb – July of 25 mg so his system was used to it. He hasn’t had any problems so far except very dry skin. He will be on it as long as his…[Read more]

]]> 37d1b78e2882e25a38d0b1601afd118b pauloram replied to the topic Partial Remission in the forum General http://www.myeloma.org.uk/forums/topic/partial-remission-2/#post-112791 Tue, 11 Feb 2014 11:28:15 +0000 Hi Stephen
No-one has the same response to treatment as others so I just go with the flow. My pps went up to 49 when I originally had CRT and then when I had my SCT and my pps stayed at 5 and never zero. That lasted 18 months and then went on velcade last Jan 2013 3 cycles and my pp went down to 7 from 48. That lasted 6 months before rising…[Read more]

]]> 87c873159cb995967a79786c69e03c6e pauloram replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102476 Sun, 19 May 2013 23:51:23 +0100 Hi Sarah & Scott
It is a good place for info isn't it? I too am in a delicate situation.I relapsed in Jan had Velcade & dex till April but suffered so much with pn that they stopped it and had one course of rev & dex.My pps went from 49 to 5 so on 7th May went into hospital for the chemo priming for second sct. Had 8 gcsf injections but on Sun…[Read more]

]]> 6468c2c578d3796d39f41ac01b03c35a pauloram replied to the topic Keith Hindmarch in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/keith-hindmarch1367593561#post-108241 Sat, 04 May 2013 15:55:23 +0100 Dear Sue
Our thoughts are with you at this sad time, you have wonderful memories of the good times, Keith will be sadly missed.
You take care of yourself
Paul & Gayle x

]]> 1d2e5fe8444f1428e3b0c145713ab89a pauloram replied to the topic My Velcade Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-velcade-journey#post-102384 Fri, 19 Apr 2013 23:42:16 +0100 Hiya David
I hope the Velcade works well for you. It got my pp's down from 49 to 5 in 12 injections but unfortunately I have had to stop it as the pn got so bad I couldn't stand it.I have been off it for two weeks and my feet havent come back to normal yet. I am now on Revlamid & dex and waiting to go in for a second sct.
Good luck
Ozzy

]]> dd1348f13b7177e66ee0ba5fc86b1162 pauloram replied to the topic Running out of options in the forum Treatment http://www.myeloma.org.uk/forums/topic/running-out-of-options#post-102328 Sun, 14 Apr 2013 18:53:03 +0100 Hiya Eve
Dont know how to private email you so answered question by here. I don't know if I am on any trials but treatment was Velcade and Dex. They hit the pps down from 49 to 5 but the pn is so bad this week they have stopped this treatment. My feet have suffered and I cant sleep with them tingling and aching. My consultant is contacting the…[Read more]

]]> dc9e33d5dde3665a2053a8cc8c7eb419 pauloram replied to the topic Two and a half years in the forum General http://www.myeloma.org.uk/forums/topic/two-and-a-half-years/page/2/#post-94745 Sun, 07 Apr 2013 14:58:31 +0100 Dear Eve
Its gutting when the remission is over and the myeloma comes back I know because I am in the same boat as Slim. If the Velcade worked the 1st time it might do the same again. It seems to be working so far for me and it has hit the pps from 49 down to 5 so dont give up hope.
Ozzy x

]]> 00af8ca631a6e04bbeadaab5721395f6 pauloram replied to the topic Shaving head in the forum General http://www.myeloma.org.uk/forums/topic/shaving-head#post-94614 Mon, 18 Mar 2013 19:51:08 +0000 Hi Jean
My hair was coming out everywhere and it was all over my pillow I mentioned it to the nurse and she shaved it all off – I looked like Kojak and when Gayle came to visit that night she screamed. It soon started growing back and by 2 months later I looked like I had a curly perm and thick with it.
Best wishes
Ozzy

]]> f422b1c95e95ba96c544b3d264b1c52c pauloram replied to the topic Velcade..............ups and downs !!! in the forum General http://www.myeloma.org.uk/forums/topic/velcadeups-and-downs-#post-94617 Mon, 18 Mar 2013 19:37:04 +0000 Hi Trish & Peter
I have had 8 injections of Velcade and start my 3rd course tomorrow. I had a very dicky start and have had a cold since January and am now on my 3rd course of antibiotics. I also take Dex and has your doc given Peter anti- viral tabs I have been taking these from the start.I have found that I have a temperature either the night…[Read more]

]]> 1e0ea9d71053ef2c57786e1ffc64a9ad pauloram replied to the topic Good response to Velcade in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-response-to-velcade#post-101995 Sun, 03 Mar 2013 12:10:03 +0000 Hiya

Thanks all.I did start having the dreaded PN , very odd feeling-difficult to explain my hands felt things as hot whilst my arm would feel it as cold and tingling in the tips of my fingers. I had 4 velcades in the first two weeks and had a week off and then they reduced it to one a week and this week will be my 4th of this session. I don't…[Read more]

]]> f8933a5bab5cbdb1962b47051da2bfcd pauloram started the topic Good response to Velcade. in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-response-to-velcade Fri, 01 Mar 2013 12:49:39 +0000 Hiya all
Well after a very dicky start on the Velcade and dex I went yesterday for another treatment and the consultant gave me the brill news that after 7 treatments my pp's have dropped from 48 to 10.I don't know how may more I am going to have and when I will have the 2nd sct but I was soooo happy I booked a short stay on Friday to Morecombe…[Read more]

]]> d301181c699caee6160aa534181abd2c pauloram replied to the topic Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/michael/page/2/#post-108095 Wed, 27 Feb 2013 19:45:00 +0000 Dear Sue
Thinking of you and your family at this sad time.Hope all goes well on Friday – a celebration of Michaels life. Your take care of yourself.
Love from Paul & Gayle xx

]]> f3c91900a363e2a54cc73476b473a474 pauloram replied to the topic Three little words...... in the forum General http://www.myeloma.org.uk/forums/topic/three-little-words/page/2/#post-94467 Wed, 27 Feb 2013 19:35:44 +0000 Lovely news congratulations.
Ozzy

]]> d83aa49d4b85df3350707105e46bcae2 pauloram replied to the topic just been diagnoised in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnoised/page/2/#post-87270 Mon, 18 Feb 2013 20:19:17 +0000 Hiya
I find it useful when I am going out where there are lots of people or especially when I fly I spray cold defense spray up my nose(I buy Boots make but there is probably other makes out there). It seems to work for me and on the one time I forgot I caught a cold so maybe its worth trying.
Good health all
Ozzy

]]> 2fb5cb1d5ccf989bcc637db70a133555 pauloram replied to the topic Sam has relapsed. in the forum General http://www.myeloma.org.uk/forums/topic/sam-has-relapsed#post-94424 Mon, 18 Feb 2013 20:18:17 +0000 Hiya
So sorry to hear about your relapse, my sct lasted only 21 months. I am now on Velcade & Dex.
Hope your treatment works well for you.
Best wishes
Ozzy

]]> 60b1a4965ba199838bd794050585f5a9 pauloram replied to the topic Peter has relapsed / info needed on Velcade in the forum General http://www.myeloma.org.uk/forums/topic/peter-has-relapsed-info-needed-on-velcade#post-94348 Mon, 11 Feb 2013 17:10:02 +0000 Hiya Trish & Peter
I also relapsed in January, my sct lasted nearly 2 years. I am now on Velcade and dex. I had 2 injections x 2 weeks and am now on a 1 week break. I had a high temp 38.7 on the 2nd injection and was admitted to hospital. I have had bad constipation had to take meds and then had the reverse last weekend with added sickness(losing…[Read more]

]]> dd53823b1cf97a5488e951dd8241e135 pauloram replied to the topic new arrival in the forum Off topic http://www.myeloma.org.uk/forums/topic/new-arrival1359543044/page/2/#post-110659 Sat, 02 Feb 2013 12:42:28 +0000 Congratulations to all you new grandparents. I hope one day I will join your happy gang!!
Ozzy

]]> 144a0ce60f77598d6505cd6d9cbbc9b2 pauloram replied to the topic Croaky/husky voice on Dex in the forum Side-effects http://www.myeloma.org.uk/forums/topic/croakyhusky-voice-on-dex#post-105112 Sat, 02 Feb 2013 12:26:43 +0000 Hiya all
Thankyou all for replying. I had the dex two weeks ago and my voice still hasn't come back to normal.I restart the damn stuff on Monday again. At least Gayle will be happy as I wont be able to speak to moan!!!

Good health
Ozzy

]]> 51239e3aed1b86ab18329fed685a2366 pauloram replied to the topic Here We Go Again in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again1359065333#post-101555 Sat, 02 Feb 2013 12:21:38 +0000 Hi Keith
You really are going through it but I'm sure the docs will sort you out.I tollerated CDT far better and with good results so hoping will do the same for you.
Ozzy

]]> 3ed4f9a1f77d2f2a435871877114a188 pauloram replied to the topic So far, so... in the forum Treatment http://www.myeloma.org.uk/forums/topic/so-far-so#post-101612 Sat, 02 Feb 2013 12:13:00 +0000 Hi Dai
So glad things are looking up for you, you've had quite a time of it.
Best wishes
Ozzy

]]> 57e5f124c85536280908d9a16cd47e6f pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94177 Sat, 02 Feb 2013 12:10:26 +0000 Hiya all
So glad your trip to India is still on. Thanks to you all for your good wishes. I have had four velcade's in the past two weeks and I am finding it really hard. I had an overnight stay in a& e last Sunday(no beds slept on a trolley!!!!) as temp 38.7. Had another one yesterday and temp rising again. I have been sick and have terrible…[Read more]

]]> 9e120fde1bbfead97a67f878e3c82261 pauloram started the topic Croaky/husky voice on Dex. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/croakyhusky-voice-on-dex Wed, 23 Jan 2013 17:40:20 +0000 Hiya all
Has anyone else suffered with their voice when on Dex? Mines croaky husky and nearly gone. The same thing happened before when I was on CDT.
Thanks all
Ozzy

]]> a944c62b902dd30964d6c5a3f9c7d6d8 pauloram replied to the topic LUMBAR KYPHOPLASTY in the forum General http://www.myeloma.org.uk/forums/topic/lumbar-kyphoplasty#post-92165 Wed, 23 Jan 2013 17:19:32 +0000 Dear Jacqui

So sorry to hear this news – this awful disease takes no prisoners,Please be strong and take care of yourself.You are in our thoughts.
Best wishes
Ozzy & gayle

]]> 06ede2e3e903400381abee230cfaa234 pauloram replied to the topic Velcade in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade1357981492#post-101480 Mon, 21 Jan 2013 21:02:33 +0000 Hiya Maureen
I have started Velade and Dex today but like you Dai the old way with the canula my hospital doesnt do it yet with the injection in the stomach/side. I had 6 courses of CDT originally took poorly on the 2nd course and had pneumonia so I must admit to be a bit nervy this time round. I have a cold and cough already so that worries me.…[Read more]

]]> 47c352d782e097816a319ae26867513d pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94170 Mon, 21 Jan 2013 20:43:37 +0000 Hiya Wendy
That's my way of thinking too with the second sct and I dont know whether I really want to go through another.I feel like you fed up that my transplant didnt last long and what the future holds for me. I was hoping to go to Canada this year but there will be no way now. Your holiday is in March so you should be able to make it. When I…[Read more]

]]> 407ce159ac87defc5e9693f8cfe93c2c pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94166 Sun, 20 Jan 2013 17:22:23 +0000 Hiya Ange
I tried to reply to your email Ange but it came back. We will also try to attend in March -health permitting. Well I have relapsed and will be starting Velcade tomorrow. I have picked up a cold and have a cough so I dont know what they will do and I'm not sure how they give this Velcade.Hope the snow is not too bad for your farm.
Hi…[Read more]

]]> a9db23e9056a03e2214801c3a44a2301 pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94163 Mon, 14 Jan 2013 16:44:34 +0000 Hiya
I too are in the same position my pp have shot up to 48. I had sct in January 2011 and it only lasted 21 months. I have had another BM biopsy last wed and full skeleton xrays. I am seeing the Prof at the hospital tomorrow and last week my consultant mentioned starting Velcade and dex. I will find out my fate tomorrow. What a start to the new…[Read more]

]]> 5e226be3c9824973df43d1d63404a20c pauloram replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/3/#post-101275 Wed, 26 Dec 2012 13:26:29 +0000 Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

]]> bf5497054514552a0ed2eb1eafb15862 pauloram replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/3/#post-101274 Wed, 26 Dec 2012 13:25:29 +0000 Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

]]> 99f0f275fe1bc90a4bf273bbc80be718 pauloram replied to the topic SCT - Franks turn in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-franks-turn/page/2/#post-101137 Sat, 08 Dec 2012 15:14:27 +0000 Hiya Jean
I had my harvest early November 2010 but didn't have my transplant until 8th January 2011 so you might make that footie match after all.
With the sct I stayed in isolation until 29Th Jan and was then went home. I know that I had a clean diet for another month and Gayle banned all visitors until my blood recovered. Every morning she…[Read more]

]]> 6aab63f097c30dc7c8a6c6296dbc36dd pauloram replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93797 Wed, 28 Nov 2012 20:54:30 +0000 Hiya Ange & Jenny
It was lovely to meet you both at the info day. We too found it very interesting and informative and was encouraged by the positivity. Keep in touch.
Paul & Gayle

]]> 6ab48215816f8f1beeba266cf0e867fa pauloram replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93794 Tue, 20 Nov 2012 18:27:31 +0000 Hi Jenny & Ange
I've been to the GP today about the back and he thinks its muscular.I'm waiting for another MRI scan so hopefully by Sat things will calm down. Hope to meet you both there.
Paul & Gayle

]]> 72c921dad260419d3ed488ed0bb2111a pauloram replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93791 Sun, 18 Nov 2012 20:08:24 +0000 Hiya Ange
We have booked to attend the 24th at the Village Cardiff. I had my sct at the Heath Hospital January 2011 and Dr Keith Wilson is speaking there. I hope we can still go because at the minute I am not feeling too good with backache. Keep a lookout for us we would be pleased to meet you.
Paul & Gayle

]]> d539cadd96b0a916ea81b9d6a25c913c pauloram replied to the topic Blue Badge in the forum General http://www.myeloma.org.uk/forums/topic/blue-badge#post-93678 Sat, 20 Oct 2012 13:46:06 +0100 Hiya
Im Paul's wife Gayle and I work in the Blue Badge section in our local authority.Give your local council a tel call to send you an application form.A new national scheme started April this year and each authority does some bits differently.If you receive DLA high rate for mobility the badge is an automatic acceptance. If you dont have this…[Read more]

]]> ba24ecd07dc7657448794db16cc0feb8 pauloram replied to the topic Sad news in the forum Under 50s http://www.myeloma.org.uk/forums/topic/sad-news#post-107008 Fri, 12 Oct 2012 17:39:19 +0100 We are so sorry to hear your awful news this disease does what it likes. Please take care of yourself and our thoughts are with you.
Best Wishes
Ozzy & Gayle xx

]]> a99c247593c8a1efc52f4618e4438866 pauloram replied to the topic Teeth. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/teeth1346374070#post-104773 Tue, 25 Sep 2012 00:18:18 +0100 Hiya

I had to have three teeth out before I had my sct. I had to go to the hospital dentist to check it out first but my normal dentist in town took them out. I am taking Bonefos and wasn't advised to stop taking them.I had no problems with bleeding.

Ozzy

]]> 589425c6856bec15b12fe79a4f03f9c6 pauloram replied to the topic Diagnosed this week in the forum Newcomers http://www.myeloma.org.uk/forums/topic/diagnosed-this-week#post-86561 Mon, 27 Aug 2012 14:01:13 +0100 Hiya Andrea
I live in South Wales but attend Royal Glam I think you must be attending the Royal Gwent.I started my journey in Jan 2010 and my pp was 22.In May it had risen to 44 and I started 6 courses of CDT. I had the SCT in Jan 2011 at the Univ Hospital Heath and have been in remission since then. My pp level remains at 4 and has been that…[Read more]

]]> a51910940aba958dbcb2e0206f4758b5 pauloram replied to the topic And the GOOD news is in the forum Off topic http://www.myeloma.org.uk/forums/topic/and-the-good-news-is/page/2/#post-110452 Mon, 27 Aug 2012 13:33:19 +0100 Dear David
Just reading your post and would like to wish you all the best in your latest round against the enemy. You can do it – think positive thoughts.
All the best friend.
Ozzy

]]> a874f25712b756434035d5ffb3afa9ff pauloram replied to the topic Lost in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lost#post-107670 Sat, 04 Aug 2012 13:44:53 +0100 Judy
So sorry about your loss. Our thoughts are with you.
Take care Ozzy & Gayle xx

]]> ba60d420ad25bb8271a00df475abbad7 pauloram replied to the topic Lost in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lost#post-107677 Sat, 04 Aug 2012 13:43:31 +0100 So sorry to hear about the loss of Peter.Our thoughts are with you. Take care Ozzy and Gayle xx

]]> 1947899a7c263e981840ca821b90a2aa pauloram replied to the topic Vaccinations in the forum General http://www.myeloma.org.uk/forums/topic/vaccinations#post-93222 Fri, 20 Jul 2012 13:42:14 +0100 Hiya Trish
I had my transplant in January 2011 and had my vacinations in January this year.I had all the ones the babies have one each month for 3 months plus pneumonia for 2 months,and meningitis x 3, and had the flu one Nov. I will have them repeated it Jan 2013. I've got the list somewhere I'll have to dig it out.
Regards Oz

]]> 8dc0ee0c6cc852f7d4e5979a481596a7 pauloram replied to the topic Revlimid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid/page/2/#post-99446 Tue, 19 Jun 2012 11:14:16 +0100 Hiya all
I had my sct in Jan 2011 and my PP never got to Zero.They have been 4 since October 2010 after the 6 cycles of CDT. On my last appt in May the consultant said that it was a good remission but I always worry because its never got to zero so the mm is still there. I too dread every appt my next one Sept I think everyone feels the same. I…[Read more]

]]> 102ee2dc7b59b002f4b2866b8bdfcbec pauloram replied to the topic PLATELETS in the forum Treatment http://www.myeloma.org.uk/forums/topic/platelets1340088331#post-99521 Tue, 19 Jun 2012 10:44:45 +0100 Hiya
When I was in hospital having my sct, on the 3rd week I had two bags of platelets but didn't have any more.I suppose the large amount of chemo they blast you with causes the new cells some initial problems.
Take care Ozzy

]]> 9826178cde809259699b6aab43139178 pauloram replied to the topic Brocho - Bridget Rochfort in the forum General http://www.myeloma.org.uk/forums/topic/brocho-bridget-rochfort/page/2/#post-92894 Tue, 19 Jun 2012 10:35:49 +0100 Dear Siobhan
We are absolutely gutted to hear this news.Bridget was a true fighter and will be missed enormously with all her wonderful advice.
Our thoughts are with you and the family.Take care.
Ozzy & Gayle

]]> 5e07bc282c30e82955f7a32181d12503 pauloram replied to the topic Joint pain in the forum Side-effects http://www.myeloma.org.uk/forums/topic/joint-pain#post-104419 Wed, 04 Apr 2012 19:47:34 +0100 Hiya
I am now 15 months post transplant and my legs ached like toothache. They have improved now and my hair grew back darker and a mass of curls. Since having it cut now a few times it has gone back to its usual greyish colour and I have lost the curly perm look!I work 6 hours daily and like Tom get really tired and need to sleep.Try not to do…[Read more]

]]> 8b017f85cfc812ff9d41cb57b2a91d89 pauloram replied to the topic 10 March 2012 in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/10-march-2012#post-107524 Wed, 21 Mar 2012 11:31:03 +0000 Dear Michelle
I'm just reading your post and I am so very sorry to hear about Phil's passing.I am Ozzy's wife Gayle and reading your post just brings home to me the true reality on how this cruel horrid illness strikes and destroys loving families in its path. Friday will be a hard day but as Gill says it is a celebration of Phil's life and…[Read more]

]]> 83b3a6dcc0c3a7a758e9e90caf92844d pauloram replied to the topic Is there anyone here from South Wales/poss link between prostate cancer & MM? in the forum Treatment http://www.myeloma.org.uk/forums/topic/is-there-anyone-here-from-south-walesposs-link-between-prostate-cancer-mm#post-98652 Mon, 09 Jan 2012 19:23:01 +0000 Hadn't heard about this link before but had read somewhere that people who worked with chemicals such as farmers MM was quite common. I worked in a plating factory and worked with many acids and other chemicals such as cadmium so I often wonder if this is how I ended up with this dreaded disease.

]]> 9190562962b4879debcc857a88397499 pauloram replied to the topic Another new kid in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-new-kid#post-85380 Mon, 09 Jan 2012 19:16:56 +0000 I was diagnosed in January 2010, had 6 months CDT and my pp level went from 42 down to 5. I had a stem cell transplant in January 2011 a year almost today. I was working until I had a blip in my treatment in the June 2010, spent 3 weeks in ITU and didn't return back to work June 2011 5 months after transplant. It was my goal to get back to work…[Read more]

]]> ae27bc62904f59fcf6677c71dd65d6eb pauloram replied to the topic Alternative to Aredia? in the forum Treatment http://www.myeloma.org.uk/forums/topic/alternative-to-aredia#post-98200 Mon, 12 Sep 2011 17:37:10 +0100 I take sodium clodranate "Bonefos" 2 tablets twice daily as I am unable to have monthly transfusion due to my gums.
I do not have any problems with these and have been taking these for 18 months.
Good luck

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