Yes I agree! It is all very complicated but I think I know quite a lot now and know which scary websites to avoid!

Hi All

I was quite surprised today at clinic that my pp has fallen from 37.1 to 34.5. Is it common to fluctuate like this? The downside was that my hb is falling each time and is now 10.3. I am still being kept on 4 weekly follow up.

Andrea x

Hi Jennifer

I understand completely how you feel. I am also 51 and just been diagnosed with SMM and will have 4 weekly blood tests to monitor the paraprotein. Mine is around 37 now but luckily I have no symptoms yet. If you are unsure about whether the monotoring is enough I would ask the consultant or nurse at the clinic.

I wish you both…[Read more]

Hi Jenny

Thank you for your message and kind invitation. I would love to come to one of your meetings soon. It would be great to meet up with local people.

Many thanks
Andrea

Hi Ali

Thank you for your lovely message. It's good there are so many people here to share experiences.

love
Andea xx

Hi Carol

Nice to meet you too. Thank you for your kind message. This whole journey is going to be alot easier with other people to talk to here.

With best wishes
Andrea

Hi Vicki

Thank you for your kind message and good luck to you and Colin with the stem cell transplant.

Best wishes
Andrea x

Hi Ted

Excellent news, glad all okay for you and hope the x-ray is alright too.

Best wishes
Andrea

Hi Ted

That is encouraging to know, good luck with your appointment and thank you for the information.

All the best

Andrea

Hi Mavis

Thank you for your message, it is a strange thing to get my head around but yes, hopefully I won't need treatment too soon.

Best wishes

Andrea

Hi Ozzy

Nice to hear from someone in South Wales! Yes, I go to the Royal Gwent Hospital. Glad to hear you are doing so well! Thank you for your kind message.

Best wishes

Andrea

Hi Jean

Thank you for your message, I can see that everyone here is so kind and helpful which is very reassuring. Wishing you and your husband all the best.

Love
Andrea

Hi Kevin

Sorry to hear you were diagnosed too. Good luck with your treatment. For me it is a waiting game until I need treatment and I have no idea how long that will be! On the positive side I have some time to prepare and am thankful I was diagnosed so quickly.

All the best
Andrea

Hi Tom

Thank you for your kind message, I am from Newport, South Wales and go to RGH so would be interested if anyone else is from this area.

Best wishes
Andrea

Hi Eva

Thank you for your kind message. It is helpful to know that I can contact you and great to hear how well you are doing.

With best wishes
Ange