pauloram

Forum Replies Created

Viewing 14 posts - 46 through 59 (of 59 total)
  • Author
    Posts
  • #93222

    ozzy
    Participant

    Hiya Trish
    I had my transplant in January 2011 and had my vacinations in January this year.I had all the ones the babies have one each month for 3 months plus pneumonia for 2 months,and meningitis x 3, and had the flu one Nov. I will have them repeated it Jan 2013. I've got the list somewhere I'll have to dig it out.
    Regards Oz

    #99446

    ozzy
    Participant

    Hiya all
    I had my sct in Jan 2011 and my PP never got to Zero.They have been 4 since October 2010 after the 6 cycles of CDT. On my last appt in May the consultant said that it was a good remission but I always worry because its never got to zero so the mm is still there. I too dread every appt my next one Sept I think everyone feels the same. I am going to Spain in July our first holiday abroad since 2009 so I am trying to stay healthy to go and although I'm 58 I am finally giving in and I am finishing work on Friday this week as like you Tom I've been knackered and its so hard to get up early when you're still tired. So here goes another new chapter in my life.
    All the best Ozzy.

    #99521

    ozzy
    Participant

    Hiya
    When I was in hospital having my sct, on the 3rd week I had two bags of platelets but didn't have any more.I suppose the large amount of chemo they blast you with causes the new cells some initial problems.
    Take care Ozzy

    #92894

    ozzy
    Participant

    Dear Siobhan
    We are absolutely gutted to hear this news.Bridget was a true fighter and will be missed enormously with all her wonderful advice.
    Our thoughts are with you and the family.Take care.
    Ozzy & Gayle

    #104419

    ozzy
    Participant

    Hiya
    I am now 15 months post transplant and my legs ached like toothache. They have improved now and my hair grew back darker and a mass of curls. Since having it cut now a few times it has gone back to its usual greyish colour and I have lost the curly perm look!I work 6 hours daily and like Tom get really tired and need to sleep.Try not to do too much and rest when needed.
    Jo have you developed diabetes since having mm treatments? I have just been diagnosed with type 2 and wondered if anyone else has?
    Thanks
    take care all
    Ozzy

    #107524

    ozzy
    Participant

    Dear Michelle
    I'm just reading your post and I am so very sorry to hear about Phil's passing.I am Ozzy's wife Gayle and reading your post just brings home to me the true reality on how this cruel horrid illness strikes and destroys loving families in its path. Friday will be a hard day but as Gill says it is a celebration of Phil's life and nobody can take away the wonderful memories you shared and you have the legacy of his children.
    Take care of yourself. Stay strong. Gayle & Ozzy xxx

    #98652

    ozzy
    Participant

    Hadn't heard about this link before but had read somewhere that people who worked with chemicals such as farmers MM was quite common. I worked in a plating factory and worked with many acids and other chemicals such as cadmium so I often wonder if this is how I ended up with this dreaded disease.

    #85380

    ozzy
    Participant

    I was diagnosed in January 2010, had 6 months CDT and my pp level went from 42 down to 5. I had a stem cell transplant in January 2011 a year almost today. I was working until I had a blip in my treatment in the June 2010, spent 3 weeks in ITU and didn't return back to work June 2011 5 months after transplant. It was my goal to get back to work I'm 58 now, but now I'm back still on a phased return I'm up to 6 hours now, I am finding it very tiring and with the many infections I seem to pick up, when I can't get to work I have to take unpaid leave! So don't hurry back to work its hard going and very difficult to get up from bed on these dark, cold mornings when you still feel tired. I like you Tom are wondering if I made the right decision to return to work. About the holidays – I am hoping this year to go on a cruise had the ok to go on Tues from the transplant doctor at the Univ Hosp Cardiff after I've had all the childhood jabs!!!

    #98200

    ozzy
    Participant

    I take sodium clodranate "Bonefos" 2 tablets twice daily as I am unable to have monthly transfusion due to my gums.
    I do not have any problems with these and have been taking these for 18 months.
    Good luck

    #91194

    ozzy
    Participant

    I had stem cell transplant in Jan 11 and returned to work 1st June. I find I am very tired even though I am still on reduced hours. I think there has to be a happy medium and I am seriously considering going part-time if the work can accommodate me. I am 57 now and feel too young to retire and I like the banter at work and can forget about cancer and hospitals and having something other than TV to talk to my wife about.It makes to feel like I have achieved something. All the best.

    #84349

    ozzy
    Participant

    I'm 57 diagnosed jan10 when I was 56.No symptoms whatsover and problem found in an annual routine blood test in Nov 2009. My pp level was 22 at diagnosis and I started CTD treatment in May 2010 when the level reached 42. I had 6 courses of treatment and had a sct in Jan this year. My level is now 4.I have a son 25 & a daughter 20 who took the shock of cancer very hard as I was well and it was totally out of the blue.It affects the whole family and takes over your life with all the hospital appt and the constant worry about the future and your health. Take one step at a time. I left all the meds to my wife she had a chart from the hospital all I can remember was 38 tabs on the mon! Stay positive I'm trying to and there seems to be a hell of a lot of us diagnosed with this disease that I had never even heard of.
    Take care. Stay health.
    Ozzy.

    #84417

    ozzy
    Participant

    Hiya Gill
    Hope to hear good news next time. Good luck to Stephen for his second SCT.

    #84419

    ozzy
    Participant

    Thanks for replying so hopefully in a few weeks time perhaps I'll be released for good behaviour and allowed back to the pub!

    #84415

    ozzy
    Participant

    Hiya thanks for replying.
    I know when I get the ok I can return to work on a phased return I never thought I would be looking forward to work!I can't wait for a holiday either I feel that I've been serving a prison sentance stuck in the house.
    Regards Ozzy

Viewing 14 posts - 46 through 59 (of 59 total)