[pamParticipant]

Thanks Nick. That was helpful. I am usually really active with exercise, walking etc . Youve got it spot on with the mental and physical thing. When im feeling good physically , mood is great and when im struggling i sink mentally. I dont do relaxation well … Adapting to the new normal is challenging. Your message helped so thanks for that. Always reassuring to know im not alone in this. All the best to you too. Hope the itch stays away. I got some aveena sensitive shampoo. Also got some aloe vera gel for my neck which was soothing. All the best to you.

[pamParticipant]

Im also having problems with lenolidomide. First 8 months was fine then developed an itchy scalp. Now taking antihistamines which have helped. I was taken off it in April and then it gradually was stepped up. Felt normal for a a couple of months. However this is half way through cycle at normal dose (10 mg) and i feel awful – exhausted, bit dizzy, just unwell. Im trying to carry on as normal but the days have been a bit of a struggle since i went on to 10 mg/ day again. I really dont want to come off it or even reduce it. Anyone else out there with similar experiences?

[Author]

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