Hi Amme and Heather. Hope you are recovering steadily Amme and either home soon or there already.Also good luck to you Heather and hope that your bone  marrow results indicate the levels needed to proceed with the SCT whilst you feel ready ,and want it here and over asap. I can really understand that ,as much as I feel anxious I just want to get…[Read more]

Hi Helen. Thanks for the advice re ” hospital musts ” to take in with me . We’re having a few days  away next week before the SCT and glad of a break from both drugs as I  had 2 cycles of VTD PACE in May  and June and appointments . Hope you have luck in finding a donor. Best Wishes Pam

Hi Rob I hope now being home you are steadily feeling stronger. You sound to have a strong and positive attitude and got through the worst period despite feeling grim for a few days. I’m due to have my SCT on July 11th and any advice and positive feedback is really helpful and reassuring . Good luck and thanks. Pam

Hello Amme and Heather, Thanks for that advice and suggestions for preparing for SCT as I’m due to have mine on July 11th too. Has your skin been sore / dry ? I was recommended Udderly Cream for feet and hands .Feeling grim plus the past few days heat must have been awful. Wishing you both a good recovery and the best of luck in the future. Pam

Hi Greg .  I was glad to read your response to Coffey as I too have the same decision to make about an allo transplant. My initial own stem cell transplant is in 2 weeks but the Doctors are recommending a Tandem allo around Christmas. I have great reservations as the statistics don’t seem good and the after effects sound gruelling if you are…[Read more]

Hi Helen, thanks for getting back to me .Sorry for not replying earlier but I’ve been in and out of hospital. Yes ,not only getting your head around having the Myeloma  but to find that it doesn’t respond well to treatment is a blow. How has your health been both with the Myeloma and also responses and side effects of the different drugs ?  I f…[Read more]

Hi Jane. Yes glowing nicely and about to start my final cycle of V-DTPACE tomorrow which will add to the glare!! Cisplatin,Cyclophosphamide ,Etoposide and Doxorubicn are given over 6 days intravenously and VTD as injection and tablet. I’m an in patient this week and 2 1/2 hrs from home ,which is tricky ,but having done it for the first cycle a…[Read more]

<p style=”text-align: left;”>Hi jellytot,thanks for getting back to me. I am planned to have a final cycle of V-DTPACE starting next Monday , my Consultant is hoping that the para proteins will get below 10 ( not great ) but plans to start the next step for harvesting stem cells anyway and then work towards a Tandem Transplant around Christmas. So…[Read more]