[pandabParticipant]

Hello everyone,

I’m also on the RADAR study, week 2 of cycle 2. Cycle 1 was rough for me due to a severe reaction to Dexamethasone, my Doctor halved the dose to 20mg for cycle 2, the first week of which was much better. Unfortunately on the first day of week 2 last week I had a Zoledronic Acid infusion, this had knocked me out for the past 3 days, very much like flu but without the high temperature. Not sure I’ll be having this again any time soon!

Best wishes to you all,

Dave

[pandabParticipant]

Hello Matt,

I’m sorry to hear of your diagnosis, I hope you manage to get it sorted.

With regard to swelling of the legs, I’ve not had any swelling at all yet although I’ve had just about everything else!

I’m in week 3 of the first 3 week cycle of the RADAR clinical trial, I can only describe the effects as brutal. I think my problem is a reaction to Dexamethasone which kicks in a few days after taking 40mg of the stuff.

I have a meeting with the Consultant next week with blood tests being done the day before, I’ll be interested to see if anything has improved.

Very best wishes to you,

Dave

[pandabParticipant]

Thank you both for your encouraging comments.

I started the treatment yesterday. There are 4 cycles of 21 days, divided into blocks of 7 days, without any breaks.

Day 1 of each 7 day block is the big hit, I have to take Cyclophosphamide,Dexamethasone and Lenalidomide in tablet form and Bortezomib by injection at the hospital.

Days 2 through 7 I only have to take the Lenalidomide.

Early days but I’m pleased to have started the treatment and feel reasonably positive at the moment!

Best wishes to you all,

Dave

[pandabParticipant]

My 4-day course of Dexamethasone knocked me out for over a week but I’m feeling better now.

I’ve signed up for the RADAR Trial although I’m not 100% sure I’ve made the right decision. I’ve been told I can withdraw at any time. I’m due to start the drugs on Thursday, I understand the first session is by way of an injection.

Dave

[pandabParticipant]

Thank you both for posting. Jane, your post is both reassuring and informative. Mariposa, I hope things work out for you and you get your holiday in the sun!

I spent far too much time yesterday reading about Myeloma and the RADAR trial, I think I have information overload so I’m taking a break today.

Best wishes to you all,

Dave

[Author]

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