I was diagnosed as having smouldering myeloma in 1999. It was diagnosed as an incidental finding and I was asymtomatic. I had no treatment for 9 years and then had a course of CDT followed by autologous stem cell transplant. I had 3 years symptom and treatment free before having a further course of chemo on the myeloma 10 trial. Unfortunately I was sensitive to the Velcade and developed a severe peripheral neuropathy which has not fully recovered after nearly 2 years. My next course will probably be CRD (includes Revlamid) followed by a second stem cell transplant. I am now 71 and continue to live a pretty active life including foreign travel. I have found Staysure very good for travel insurance, and also Marks and Spencers.
