Myeloma Forum | PaulineBoughton | Activity https://forum.myeloma.org.uk/members/pauline/activity/ Activity feed for PaulineBoughton. Thu, 23 Apr 2026 14:04:41 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 92eb300ae66170799ed1a8b7ecffcc84 PaulineBoughton replied to the topic One Year in the forum Carers http://www.myeloma.org.uk/forums/topic/one-year#post-106188 Sat, 12 Nov 2011 13:11:03 +0000 Thanks Eve, I might take you up on that! I think our outlook on life is the same. I believe you should make the most of today and enjoy every minute of it. We dont have a lot of money but we have each other which is far better than anything else. I try to turn every negative into a positive (not always easy!) but it works for me. MM took over our…[Read more]

]]> 83d720196a36ff4325a990f38501db22 PaulineBoughton replied to the topic One Year in the forum Carers http://www.myeloma.org.uk/forums/topic/one-year#post-106186 Thu, 10 Nov 2011 14:34:01 +0000 Hi Eve..

What a lovely post indeed. It is amazing how we all keep smiling and put on a brave face. Do we all do that? Do we all say "well there is always someone else worse off"? I know I do. Grah (hubby) is now 2 yrs post transplant (well he will be next month). Oh boy what a journey it has been but it has made us even closer and it has made…[Read more]

]]> d0a4ea52d2af3ca05bf8e73ec704dc99 PaulineBoughton replied to the topic Levels back up... :-( in the forum Treatment http://www.myeloma.org.uk/forums/topic/levels-back-up-#post-98055 Wed, 31 Aug 2011 16:06:56 +0100 Hi Chelle

Hopefully it is just a blip. I know my hubby's bloods are rarely what we expect them. There was one occasion when he was told he needed a platelet and blood transfusion only to be told a few hours later that he didn't!

Often consultants only tell you how much they think you need to hear so my advice would be to ask what options…[Read more]

]]> e60a6844c8ad56f5cbab72d470da8575 PaulineBoughton replied to the topic Struggling to Cope in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917/page/2/#post-106100 Wed, 31 Aug 2011 15:55:58 +0100 Hi Chelle

It amazes me with all you have on your plate that you found time to reply to my post… thank you. I do hope your hubby's treatment is soon back on track and that they can get him back into remission. I think you are right… do we ever know how to act.. probably not. I have shared my thoughts with hubby today but he is just getting…[Read more]

]]> 8e1da58ee195cacdcc84b5fc28caa9c3 PaulineBoughton replied to the topic Struggling to Cope in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917#post-106097 Sun, 28 Aug 2011 11:54:02 +0100 Thanks Dai. That makes complete sense. I did let him know that it is the only way I can deal with it and think he understood. Reading Eve's last post makes me realise how lucky we are… I do hope the treatment works Eve and I am sure everyone on here is rooting for your hubby.

Everybody has been so kind. You are truly wonderful people and I…[Read more]

]]> aa6ecec335f73310830593d7befae889 PaulineBoughton replied to the topic Struggling to Cope in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917#post-106095 Sat, 27 Aug 2011 10:34:57 +0100 Thanks all for your advice which is most welcome. Insomnia also plays a big part which is probably why it is sometimes difficult to keep things in perspective! I will take all your advice on board. Hubby is now saying everything is fine and we should now forget what happened on Monday…. mm typical eh! This really is a roller coaster illness but…[Read more]

]]> 8a00558884b6fa59c2cca59729fc1ce6 PaulineBoughton replied to the topic Struggling to Cope in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917#post-106088 Fri, 26 Aug 2011 14:56:06 +0100 Thanks again Jean. It is nice to know there are people out there who understand.

Pauline

]]> 9cdcca9ade91c6ddc14979ad45c08b3d PaulineBoughton replied to the topic Struggling to Cope in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917#post-106086 Fri, 26 Aug 2011 14:06:56 +0100 Thank you both for your replies. I feel very alone this week so it nice to know that actually I am not.

You both make very valid points and I have tried as tactfully as I can to suggest that my hubby phones the helpline number to discuss his feelings with someone who is outside of the situation and can offer the best advice. I am hoping he…[Read more]

]]> b35fa49f32a793cea03b1adad5e2f907 PaulineBoughton started the topic Struggling to Cope. in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917 Fri, 26 Aug 2011 10:18:37 +0100 Hi

Having looked at this site since my hubby was diagnosed with multiple myeloma in 2009, I have struggled through and thought I was doing a pretty good job as carer and keeping everyones spirits up… keep the tears til I was alone. Hubby had a successful stem cell transplant in Dec 2009 and touch wood we have been going along quite nicely…[Read more]

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