Hi Ian,
Thanks for that info. It’s looking like I may not be on the agenda for the MDT meeting this Friday as my PP result doesn’t seem to have come back from the lab yet, so it will probably be another week before I find out for definite what’s in store!
How did you find the Velcade in comparison with the CTD? I’ve not come across “CTDa” before. One of your other posts tells me the “a” stands for “attenuated” but I’m wondering what dosages this indicates. I was on three-week cycles, starting with 500mg of Cyclo on days 1, 8 and 15, 40mg of Dex on days 1 to 4 and 12 to 15 and 100mg of Thalidomide every day. After three cycles the Thalidomide was increased to 200mg daily. I don’t know if that was because they thought the PP should have come down more, or because I was tolerating the drugs fairly well, or both!
Your post describing your SCT is also very helpful. The detail you give answers a lot of questions.
An aquaintance who lives in Yorkshire and has MM has mentioned the special mouthwash in relation to mucositis in the mouth resulting from the Melphalan. My hospital, in the north-east, hasn’t mentioned this; they apparently favour chewing ice to completely chill the skin lining the mouth, which seems to stop the Melphalan from getting anywhere near it and causing a problem! Apparently it works, but you’ve to do it for a half-hour before the Melphalan, while you’re having the Melphalan, and for a half-hour afterwards!
I’ve started using a Sensodyne toothpaste in an attempt to desensitise my teeth against cold. Hope this works!!
Hope you’re doing well after your SCT and all the very best of luck in 2015.
Peter
