[pedro16Participant]

All I can say to you Rebecca is wow! And Stanley, you sound as though you will get there before very long. I know from having several relatives and friends who’ve had knee replacements, they are tough to recover from, but with your mindset I’m sure you will do it.

I’m just commencing a new line of Chemo’ and my platelet count dropped to 11, so banging my head, as I go in the loft to get the Christmas decorations down (A Lemax Village, well nearly a City 😂) was a bit worrying for my wife.

Still now the Village is erected in our lounge, with our JustGiving page, we’ve managed to raise over £300 for Myeloma UK.

Onward and upward guys (for me, without banging my baldy head!)

Pedro

[pedro16Participant]

Hi Rabbit.

I hope you are as well as can be expected.

As I look at some of the posts on the various topic forums, your name seems to crop up on a regular basis and I just wanted to show a bit of appreciation and say ‘thanks’

I’m sure like me, you would ensure that whatever you say, has been researched and this is something that not everyone may be capable of doing.

Keep it up!

Pedro16

• This reply was modified 6 months, 1 week ago by  pedro16.

[pedro16Participant]

Hi QPR_FC.

Can I ask; why the South West?

I’ve had two cycles of VDT-Pace at Lincoln Hospital and followed this with 2 stem cell transplants in Nottingham City hospital.

After 18 months in remission, I am now on a newly approved treatment, called Belantamab Mafadotin at Lincoln Hospital. This treatment is administered as an Out Patient, with several hospital visits per week.

Personally, I have received excellent treatment by both hospitals, although like most they are extremely busy, but I honestly don’t feel that you will change this where ever you are.

I think that there will be parts of Lincolnshire and Nottinghamshire that would meet your requirements, although Nottingham iteself is not a place I would chose to live.

Pedro.

[pedro16Participant]

Good morning Morwenna.

As I’ve just come out of remission, the numerous medications that I currently take as part of my Chemotherapy, often reference the dreaded diarrhoea, however unlike several posts, I’ve not changed my diet too significantly. I certainly do think it is something I really should consider, but with Children and Grandchildren staying pretty frequently for meals, I’ve found it to be a bit of a challenge for my wife.

As I have said, I’m fortunate that mine is not constant and so my current remedy is taking Imodium Instants when required (I have checked with my Consultant about this course of action) and ALAWYS carrying some with me, when I go out.

I can only say that I hope your situation improves.

[pedro16Participant]

Good evening Rabbit.

My story is a bit longer than my post implies.

In May of 2022 we ‘rang the bell’ for my Grandson (an identical twin) after he fought and won a Lymphoblastic Leukaemia diagnosis at one years old. In October of that year, and two weeks before I was diagnosed with Multiple Myeloma, my youngest Daughter who was 35 years old, was diagnosed with Breast Cancer. So 2022 was a bit of a tough one!

Watching your children and Grandchildren suffer is far, far worse that what we suffer ourselves and a worry too. As an identical twin, my other Grandson has an 85% chance of a Leukaemia diagnosis. We cling to the 15%!

As I look forward; I’m filled with hope, as there are many great and caring institutions, who are working wonders to help people like us and Myeloma UK is one of the most important. For me personally, the NHS have been outstanding and my Consultants and Nurses the very best. I hope that you have had similar support.

I wish you well and hope that your remission is a long one and I will keep you and the others who view my posts updated on how my Belantamab journey unfolds.

Take care!

[Author]

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