I too had problems with ‘useless’legs but I’d like to give a bit of history first.

My diagnosis of myeloma occurred in a very roundabout way. I’d suffered increasingly severe migraines and noticed that I had difficulty raising my right leg so that I’d have to pull it up with my arms in order to cross a stile. It was discovered that my…[Read more]

I too suffered from cramps. I mentioned it to my consultant who prescribed quinine tablets. Alternatively, it was suggested that if I didn’t want to take another medication I could drink a lot of tonic water as it too contains quinine – but she couln’t quantify what a lot was ….just to drink like a fish. I took the tablets and didn’t…[Read more]

All the best meanwhile,…[Read more]

Initially I was to have my chemo on the 6th December, be sent home, to return on the 11th for isolation. but then I received another phone call saying…[Read more]

I too was one of those unfortunate ones to have an allergic reaction to Allopurinol. The hospital wasn,t at first sure whether it was the Allopurinol or the Revlimid but I too took the risk of taking Revlimid again and luckily i had no further reactions. But I was hospitalised for over three weeks, had severe swelling of face body…[Read more]

Yes, I,ve got the answer. Dai, ther,s to be no chemo-priming. But I have got the GCsF injections. I had thought that I would have more hospital appointments and more tests but I was simply handed eight syringes to inject myself with starting on the day four days before the stem cell collection. That,s no problem but is that…[Read more]

Roll on tomorrow when I will find out what,s happening. It,s school holidays this week so we,re going away for a few days and the following week I have a few non-alterable (non-medical ) appointments so no time to fit in any further medical tests… Tomorrow will reveal all.

Peggy

I am on the myeloma xi trial, was randomised to get velcade, and have just completed 5 cycles of this.
On Friday I was told that i was ready for progression t SCT. Two days have been set…[Read more]

I used to have longish hair but now it's dead short especially at the…[Read more]

Peggy

I too had that dreaded allopurinol reaction………. started off with a rash and then my skin started peeling off all over. Unfortunately I was given an antibiotic which itseemsthat I was also allergic to and ended up in hospital for over three weeks. So no allopurinol, no meropenem, no erythromycin, no trimethoprim and no…[Read more]

I 'd like to go on holiday this year, last year I was too ill, but I've just been prescribed Aranesp EPO which is to be delivered fortnightly and has to be kept in a fridge. I have to…[Read more]

I even had to send for my son from Uni to say possible farewell the first time…I overheard the consultant telling my…[Read more]

Only just seen this and in a bit of a rush, so briefly. I'm 54, also Light chain, diagnosed some time ago, probably June/July 2011 but also just starting second cycle of RCD on trial. I too had bad reaction to Allopurinol and was hospitalised for more than 3 weeks. So bad that I called up my son from Uni to say possible farewell.…[Read more]

Well, hey ho, I am up for now so that at least is something positive. Hope tomorrow continues as today

Love to you all,
Peggy

I saw my consultant this…[Read more]

My thoughts are with you and Stephen

Best wishes ,
Peggy

Thanks Min for the tip about the yoghourt…it helped with the first days load.
Unfortunately I am only permitted to have yoghourt max twice a week so I'm reserving it for those days when I have 60+ tablets..other days I'm back to loads of oats like a horse.

I've also seem to have cracked the self injecting with fragmin : I watched…[Read more]

Badger- what do you mean by SCT?

Have started on steroids this morning in addition to my usual cocktail. Though I did ask a lot of questions at hospital yesterday I forgot to ask what to do over the weekend if I feel really ill. There's lots of phone numbers for weekdays but what for now? Hopefully I'll be okish…[Read more]