Pepita-louise

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  • #120277

    pepita-louise
    Participant

    Hi Bev,

    You’re right! You do end up worrying about everyone else!!! It does seem to hit family hard too – 0they are more worried about he condition than what you are!!!

    I continued working for a few months then sadly had to stop after i started my Chemo. I think it all depends on how it affects you. Your immune system (already low from the Myeloma) gets impacted from the chemo so infection risk is higher. There are things you have to keep an eye on (you will be told by your team).

    I am on the XI trial – had my chemo and stem cell transplant and all is good at the moment. I think your family will accept it all.

    Be good and careful – keep smiling. Look for the UK support group on FB – they are great and vey helpful.

    #114770

    pepita-louise
    Participant

    Hi there, My name is Pepita and was diagnosed on 20th Dec 2013 aged 37. I have had a successful chemo treatment on Revlimid and am now (yesterday actually!)Started the process to prepare for harvesting stem cells for my impending transplant. I have to admit, I am terrified!! Central line being “installed” tomorrow due to naf veins!

    After my first ever treatment of IV chemo (Cyclophosphamide) I’m not feeling too well so now know (roughly!) what I’ll be facing in a few weeks. In my case, there has been the discussion of a bone marrow transplant due to my age, but I’ll get through this bit first!!!

    Do you have any advice at all for comfort duting the process? (apart from boredom beating items!)

    #114769

    pepita-louise
    Participant

    Hi there,

    My name is Pepita and was diagnosed in Dec 2013 aged 37. I have had a successful chemo treatment on Revlimid and am now (yesterday actually!) Started the process to prepare for harvesting stem cells for my impending transplant. I have to admit, I am terrified!! Central line being “installed” tomorrow due to naf veins!

    After my first ever treatment of IV chemo (Cyclophosphamide) I’m not feeling too well so now know (roughly!) what I’ll be facing in a few weeks.

    I am pleased that you are looking forward to your 10 year anniversary and hope that i will be as successful. In my case, there has been the discussion of a bone marrow transplant due to my age, but I’ll get through this bit first!!!

    Do you have any advice at all for comfort duting the process?

Viewing 3 posts - 1 through 3 (of 3 total)