[peter49Participant]

Hi, many thanks for this , and its good to know you’re dad is still living a more normal life now with new drugs. It looks like new drugs are emerging all the time from the hard work done by research staff, and guided by the reactions of patients as they are tried. I am waiting to start the KRD and hope to let people know on Myeloma UK how I am managing on it. Hoping for the best

Many thanks again

Peter

[peter49Participant]

Hi Jane

Many thanks for this information. Your replay is very useful in seeing what the likely impacts and results of KRD.

Especially useful to know what the ‘K’ and the ‘R’ seem to be kinder and more effective that other options. The impacts the ‘D’ I am assuming will be similar to what I’ve already had in VCD. In fact the steroid seemed largely benevolent, and I was especially grateful for it in the immediate aftermath of diagnosis where it was so effective in dealing with the very significant pain in my back, legs, knees etc etc.

Once again many thanks for your help and I’ll let you know how I get on

Peter

[peter49Participant]

Hi Tony

many thanks for you reply. I will try the “ask the nurse” service as you suggest, and also look at the “peer buddy” arrangements to see if I can get some information. It appears that KRD is quite new so there is less information about it generally.

Many thanks again

Peter

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