Hello Sandra,
Am very sorry to hear about your husband, but by reading your last post, things are starting to improve (light chains down to 470). I am very new to MM – just starting my third cycle, and am getting to grips with the terminology and effects. It can be VERY confusing… But this site is a great support – there’s nothing quite like reading extracts of real people who have been through this ordeal.
And as numerous people have said, MM is very individual, and for what it’s worth I can only tell you of my short experience so far. I was admitted to hospital with a very high reading of creatinine (greater than 500), which showed my kidneys were in a serious state. And either the paraproteins and/or the light chains were in excess of 11,000! I’m not exactly sure which or both are at fault – my consultant calls them the ‘squiddly-diddlies’, so I need to get to grips with this.
To the positive side – these ‘nasties’ have now reduced to 400 – and the creatinine (kidney measure) has reduced from more than 500 to 173. Talking to the consultant – she says the important measure of kidney function is the flow rate – and this has gone from almost zero to 37%. Exactly like your husband – I was/am more concerned with the state of my kidneys than the MM – and I think what I’m trying to say is – you never know what’s going to happen tomorrow – and I’ll keep my fingers crossed that your husband’s kidney functions improve as the MM treatments continue. Tell your husband to keep his chin up – very easy to say, I know. And I sincerely hope he improves.
Peter
