Hello All
Just thought I would add my little bit to the conversation I was diagnosed in 2003 with a Plasmacymtoma (PCT) affected my vertebrae L5 which almost destroyed it but I had a bi-lateral scaffold but in to support my spine which has worked very well except for the fact it has damaged my sciatic nerve and does cause quite bad pain in my…[Read more]

Hello Jean
I think that is how everyone feels at first, I have to admit I was same but once you get into it and you start arranging things to do I am sure you will enjoy it

Thanks Tom
Yes it went well for about four years, but we sent out over 80 letters to potential patients but never had any response so the original group was fine but things happen and we were down to four, the thing is it is difficult to ask someone to come along just to 4 people, still if thing improve we may be able to start again….us four…[Read more]

Yes I read it with interest but it seems as always it is going to be a long way away before they even start trials.

IT always is a difficult I recently tried AGEUK and as I have been in remission for the last 12 months I got an reasonable quote but that was only for europe….I think though i can't see much luck for DR.

I agree with what you say but I think you miss the point, I think people get the wrong idea what support groups are all about, it not a matter of sitting around bemoaning our misfortune we all tried to be positive, sometime have talks by a wide range of different people from a consultants to aromatherapist we also did outside trips together and we…[Read more]

I never saw this documentary but sounds like a bit of sensationalism should have asked me to go on !! diagnosed in 2004 and still here and been in remission/plateau for 4 years with no chemo. maybe i'm lucky but reading this posting makes me angry, I agree have lost some good friends from our support group but several ther have been with it for…[Read more]

Hello everyone who replied to my message I thank you very much for all your comments, like I said I try to remain positive……

Eve, All I can say about Velcade it has worked for me I started New Years Eve in 2007, but due to shingles and then my Femur fractured I had to stop after about six weeks, then my consultant started me again in April…[Read more]